My son is going to be 20 years old next week. They grow so fast. Enjoy every moment. It flies by really quick. He doesn't like tea or coffee. I love both. He's strictly a fruit juice and water man! Always has been. (milk too). 2 is great age for a kid. Especially with the holidays coming. I used to love to do the reindeer hooves in the snow and milk and cookies for Santa stuff. Lots of fun. Heck I still may do it. My husband loved eating the cookies and milk every year! lol. Now I have furry kids (2 dogs and a cat) all rescues. They are cool. I have learned so much from you. You are a very smart person. Thanks for all of the helpful advice. The chamomile info is very interesting. I never knew that. Thanks again for being so nice. I'm sorry I've talked so much. I do feel better though. I really appreciate your kindness. Hope you have a good night. Bye for now.

We're here to help each other. I have learned so much from the people here. There are some I wish I could hug they have helped me so much. Be it with information on this stupid diesease or helping to get me grounded again after having a melt down. I have decided after I can start treatment again I'm going to also go see a psychiatrist. Its hard for me to say that, but with as much pain and all the fighting I have done just to find out why I think I need to talk to someone. The good thing is being a military spouse I don't have to pay for all the treatmentsand drs. Except I'm not sure how things are going to work after this switch in insurance. It took 3 months to get a new referral to go back to aquatic pt. By then I was pregnant and couldn't go because the temp of the pool. I will get back into it after this goober boy is born though. I will also be in another area that has more amenities than this poh dunk place I'm in now. Keep in good cheer and enjoy life as much as you can.

Thanks again. Here I am feeling sorry for myself and you are pregnant with RSD. I'm so sorry you have this at such a young age and while pregnant. I'm 48 old and am an old hag! I give you so much credit for dealing with RSD. You have alot of strength. Our children gives us strength we never knew we had to deal with anything too, so that we can protect and be there for them. My son has been my anchor as I know your children are too. Congratulations on your oncoming arrival! How exciting! As for the psychiatrist, I have been seeing one since I got this disease. He has helped me immensely. I take antidepressents and antianxiety meds along with the meds my pm and neurologist drs for my have given me for the RSD and Fibromyalgia. I didn't want to go, but I was so overwhelmed and scared by this disease, I knew I needed extra help. It's nothing to be ashamed of. We are all dealing with alot. RSD is very scary especially because of it unknowns. Just be careful not to take anything until you are sure it's okay with your drs while you're pregnant and also if you plan to nurse afterwards. Because some meds can possibly hurt the baby while inutero and while nursing, let the dr know all this prior to taking anything. I'm sure you already know this. My dr has helpted alot, but I still need to talk to people going through what I am. The combination helps alot. And don't worry, the pills don't change you. They just make it easier to cope. If you don't want to take pills, a psycologist can help without giving meds. And God Bless you and your husband for protecting our country! I seem to be having a better day today with my stomach, but am still seeing my dr tomorrow to make sure it's nothing serious. Thanks for helping me through my meltdown this weekend. I'm not always that upset, but it was just a really bad pain weekend for me You're a good friend. Get some rest and take good care of yourself and your little ones. And keep the faith. You are going to be just fine.

It is difficult with rsd. Whether your preggo or not. I can't take any meds except a norco every now and then. I am very happy that your stomach is better today and definitely get it checked. My first pregnancy I went into almost full remission. This one I did till about 3wks ago. But every pregnancy is different, just like we are all different. It is hard not being able to get rid of the pain but we do what we gotta do. My babies take priority over me. If the pain gets too bad then I will have to give up breastfeeding and go to formula for him. I already know what kind also. Same one I used on my first son if this one can handle it, but I will start off with breastfeeding so he gets some of my immunity to diseases. Heck I have never had chicken pocks or strep throat lol. I guess this is the universes way of saying hey you may have a great immunity but here ya go. Dont be so quick to be smug ya goober. But I know better. I would love to have my personality back because I am not an angry person and thats how I feel a lot of the time. I loose my temper at the slightest thing some times, or go off crying when my husband says 1 thing. This is not me. I was a happy person that loved challenges. Now not so much. I hope you have a great day.

I get angry at my husband too sometimes and burst into tears when he says things sometimes. He is just trying to help, and I shouldn't get mad, but when you're in pain all the time it's hard to not have a short fuse at times. He understands I don't mean to get mad and that it's just the pain speaking, as I'm sure your husband does too. I used to be a very happy and active person too until I got RSD. I've sorta isolated myself until now. It's good to talk to the others going through this. Other people who aren't sick with this just don't know. It's too hard to describe to them.
I can't stand when I tell people how much pain I'm in, say that I "look good". It makes me mad. Looks aren't an indication that I'm okay. They don't feel the pain I feel, have the limited range of motion I have or the bedsores I have. They don't need to take over 20 pills a day just to get out of bed to function at a minimum. And they don't have the stress from all the medical bills we are drowning in from all the doctors we have to see all the time. Sorry, I'm just venting again. Does that ever happen to you and does it bug you too. Maybe it's just me. Anyway, I hope you have a good night. Remember one day at a time.

Hey Renee,

It's never just you, that's the truth of this condition. It tests us in every way, every day, until we just want to scream and hide. But we don't, we keep going, and every time I hear people like you admitting these feelings but then expressing something funny, cheerful or just strong in another post, it fills me with pride to know that we CRiPSers have such a steely core to even the most fragile body.

Pain, money, family, stress, emotions, pain, grief, worry, more pain... Sometimes life feels as if it's just about the bad things, other times we can laugh and hug and feel great, even if it's only for a short time. Never forget that those days come around again - even if it takes a while lol

They don't hurt us on purpose, they just don't know what we endure because they don't have this thing gnawing at them all the time. It's frustrating, but it's not their fault, bless em. That frustration is why we come here some days, so vent away freely and I hope you feel better afterwards. Sometimes just knowing you're not alone is enough!

Hope today is more smiley for you, and your pain is less. Hang on in.

Bram

Thanks Bram. I know people mean well, and I just get too sensitive when they say I "look' fine, when I hurt so much. My hands and feet are so swollen too and the sores hurt so much.The burning is also so painful. Well, I know you understand. I try to be not let it get to me, but sometimes on my really bad pain days, I just take things to personally. Thanks for making me feel better. And I am feeling a little better today, though I'm still going to have my dr check my stomach out. My day is more smiley today because of friends like you. I want to be strong for others going through this, but today you helped me be strong. Thanks again and I hope today is a good day for you too.

It does hurt when people that are close to us say well you look fine. Its the people I don't know that irritate me lol. I had 1 woman when I got one of thos motor scooters at Walmart tell me she wanted it because she couldn't walk (I had just watched her jog across the parking lot) and I would be fine after all I had a cane that I probably didn't even need. I said really? Then you might be interested in the fact that if you can't walk and I saw you jog ac4oss the parking lot and so did the cameras you can get in major trouble for impersonating a disabled person under the ADA? She said whats that lol. I got my scooter that day lol. Im not going to say don't let them get to you because they get to me. I am going to say keep smiling and be of good heart.

!st Welcome Renee and sorry for the circumstances that brought you here.

I've read many of your posts and wish I could hug you and say "I know" because unfortunately I have experienced much of what you describe. Everyone here helps lift you up so you can keep fighting and LIVING!
We all help each other through the "pity parties".

I can tell you that most of us share your experiences. The affected body parts, symptoms and treatments vary of course. Unfortunately, I think everyone in this group understand each other much more than people with out this monster disease.

If you follow some of our posts you'll see many of our experiences are very similar at one time or another.
Bram especially is a huge support and I don't know when she finds time to take of herself.

I think we've cried for each other, offered support, expressed our rants (I sure have) and shared treatment information.

This is a wonderful place for all of that and more.
I wish you some relief and strength!

Thanks Allanira. I will try to not to let it get to me. I just got back from New York. My husband had to drive me to my Endometriosis specialist to get a check up to make sure the endo didn't come back. (I thought that may be why I have had such stomach pain.) Well, good news is I am still endo free, but bad news is I still don't know why my stomach hurts so much. So off to my gp tomorrow to see what route he thinks I should take. I think I'm going to need another surgery to remove my gallstone. Surgery and me don't do well, because of my rsd. I've had spread because of my first endo surgery from my wrist down to my leg. Second endo surgery seemed to go well, but I still have pain in the site the surgery was performed(I think its the RSD). My dr said it could take over a year to heal from it, because it was over a 6 hour surgery because of an infection I got from the first one. Anyway, we shall see. I am so sick of seeing doctors. I have calendar just for my dr appts. It's not much fun as you well know. Well I hope your doing okay and good luck again with your benefits. It will be okay. Just remember to keep the faith.