Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-03-2013, 05:36 AM #7
flora99 flora99 is offline
Junior Member
 
Join Date: Sep 2013
Location: Near Oban west coast of Scotland UK
Posts: 18
10 yr Member
flora99 flora99 is offline
Junior Member
 
Join Date: Sep 2013
Location: Near Oban west coast of Scotland UK
Posts: 18
10 yr Member
Default Thanks for your support

Hi Az-Di,
It was such a buzz to get your lovely reply,
I am here for you if you need my support,too.
I hear your concerns re if you need sugury.like you i carry that worry too,but i coap on a daily basis by doing my garden and taking a day at a time.
If i cant garden i go for a walk in the fresh air.When its really bad i dont want to do anything,which is v bad mentally.,my husband is great he says come on lets do something nice.its usually a great effort,but if i get out the house for a while it usually lifts my mood,as does excersise.
Ive joined the village art groupe,and find getting absorbed in that helps as well.
Are you able to use a paintbrush?
I will let you know how things progress with my dilema!
Big hug
Flora99
X



Quote:
Originally Posted by AZ-Di View Post
Welcome Flora,
Sorry for the circumstances that bring you here. This is such a wonderful group of people. We're the only ones who really understand this monster. However, all we can is offer moral support and advice to one another.

Not only was my broken wrist surgery screwed up I got RSD/CRPS as well in my hand and arm. They refuse to do further corrective surgery. I don't know what I'd do if i needed surgery elsewhere. My P.M. Dr. said she would probably give nerve blocks before and after surgery and hope for the best. I also take Vitamin c 500-100 mg. to help prevent spread. My RSD beast is kept pretty with nerve blocks for right now.

Tough decision for you I know. When I went for colonoscopy I was worried if they had to cut out any possible pollips. That Dr. told bluntly that the RSD probably won't directly kill me even if I wished it would, but colon cancer would.
Thankfully no cutting was necessary.

Please keep us updated.
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