Last couple of days has been tough on me.The cold air,or a touch of bad weather..Or walk too much.,chores,etc..Leg has been really bad with pain,swollen,fire and blotchy..Yesterday I was laying down,light sleep ,All of a sudden I had a muscle spasm in my left wrist .made like a fist shook it up and down..It scared me..Today laying down my eyes opened and shut with these spasms...Its really scary..I feel like I do not know how to control these..I have been having more spasms lately.Does anyone else get these?
This afternoon my pain level was a 10,had to go to work.I felt terrible..Then because of the pain,I got sick to my stomach..was not good..Got a gingerale felt better after awhile..still in pain,but not as bad..about a 5..thank you for reading..

Wow, I don't know how you work with all those symptoms. I give you props for that.

I get muscle spasms in my left eye lid. My doc says I have muscle spasms in my back (which i think is something else). I take muscle relaxers now. My right leg (one location of my pain) jerks out. I lay down all day because of the pain and out of no where my leg kicks out to the side. My dogs don't appreciate the kick they sometimes get from me. Sometimes my entire body jerks. It's a very strange feeling.

I assume the body "jerks" are from the RSD. Everything else is different. RSD has so many symptoms it's hard to tell what is what.

I hope you feel better soon!
Heather

Are you taking any magnesium? You might just be low.

I get those too! Every now and then I go into what I call small seizures where I'll start shaking uncontrollably. I really hate it when it happens in a restaurant or some other public place. Yuko!!!
My neurologist prescribed Cymbalta for them which helps making it happen less and milder when it does...

no I do not.Do you?does it help?I have been getting them,but they seam worse lately.I hate the sweats too.I swear I never get rested.I come home from work,I am so tired.I know one thing I just do not know how much more we can all take...Its hard.But trust the Lord.

Yes, I take them. Mrs D promotes the epsom salt bath, which helps many but I wasn't able to absorb enough to matter. I just take a pill every few days (it says take two, but I take one). I get tremors in my right hand, which is different then body jerks, which I only get when my levels are low. I got the SlowMag at Walmart for like $8.

I used to get nighttime sweats (not daytime), but haven't so much lately. Not sure why. Maybe my lymphatic system is just doing better. I know it's a symptom of autonomic neuropathy.

its not easy.There are days I would like to stay in bed.It always seams like I want to take time off because of it.But that might be a every day thing.I have to keep going as long as I can,but it is getting harder.What I really hate is I feel ok,than oh boy pain is over the top,and get sick to my stomach.No bathroom in site.I am a bus aide.So I try to carry gingerale,and mints.They help,but I hate that..Do other people get sick like that?And the headaches..I am so glad we are able to share,because sometimes I feel alone..Thank you everyone from the bottom of my heart..WE ARE FAMILY..

Yes, my stomach was a mess. My doc said that since my body was under so much stress, PTSD and whatnot, that it was reacting to that. So I started taking Zoloft as it's a good PTSD drug (I was told). Well, it worked. I also found out I have a slight hiatal hernia, so I had to do a round of Prevacid, did some massaging of the stomach from an example I found on YouTube. My stomach is way better now. Still get some reflux, but the constant nausea is gone. It only comes around from time to time and it's not horrible.

Hi,
I have had symptoms of PN for many years and as many as 32 Drs. misdiagnosed my condition even resulting in a AVM and anyersm in my brain resulting with brain surgery which turned out to not be related to PN. I have had the spasms you are talking about in my eyes, stomach, legs. It is very scary but now that I have a diagnosis at least I know that I will have varied symptoms. I cannot even work as you, having pain levels of 10 most of the time. How you can do it must be very difficult.
If anyone has had an extreme loss of weight in a few months and pain in the trunk of your body could you please tell me. I was so sick with this that I could not eat. Also, does anyone take as much meds as I do; Lyrica, Cymbalta, Morphine, Doxopin, Temazepam?
I was diagnosed finally with a biopsy as everything else had been ruled out. Pretty much matched symptoms on line and requested a biopsy per what was stated the only way to get an accurate diagnosis. Having extreme loss of nerve fibers was apparent and I have worsened throughout the years.
I always felt that the Dr.s thought I was psycho symatic so those of you who are reading this and have the many symptoms discussed in this forum don't let them tell you that you do not have anything wrong. Have that skin biopsy and save yourself many years of Dr. visits.
Being years old I have heard it all from specialists to natureopathics none were able to help me. The meds I take are the only thing that works.

to everyone I am so glad I am not alone in pain and spams, I literally had spams that are looking like seizures. I'm scared my doctor is worthless.

Can a RSD cause seizures? I found a doctor I would like to see. My pain management doctor who put in my SCS is wonderful but off to take care of a family member who is very ill.

I have to wait on my POR (workers comp) to give me a referral (I ask 3 weeks ago and called again yesterday,) the doctor who specializes in RSD will not schedule until I have referral.