Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-07-2013, 02:35 PM #1
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Hi Swat,

That was obviously a horrible thing for anyone to say. I hope you are at your friend's house now and are feeling a bit better.

Hang in there.

Kim
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Old 12-07-2013, 04:59 PM #2
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Swat im so sorry anybody would say such a horrific thing to you! That's just horrible! That said I completely understand where you are coming from, After I couldn't work anymore I dived in and started helping caring for family with extensive health issues. However after 4yrs of doing it, Ive been doing a lot of reflecting and I realized I lost who I was after I was injured and then when I plunged into caring for family, my life consumed around that, and so I still never had found who I truly am after everything. So im making MAJOR changes for ME. My life does not revolve around my family, I do have one outside of it, I just need to find it. So by doing what ever im doing on this quest, im going with my good friend on a trip for a day, just a day, but its a day just for ME! So take however much time and find who you are outside of your family, because there is a YOU, and YOU matter, and YOU deserve happiness!
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Old 12-07-2013, 05:00 PM #3
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Wise words tos8
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 12-07-2013, 10:27 PM #4
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Ending your life is not the answer. You have so much in this life that you still can do! I know it doesn't feel like that now, but there is more. Call the local suicide prevention hot line. If you are connected to a place of worship, contact a clergy member. Find someone who will listen and help you. Please don't give up. You are worth fighting for.
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Old 12-07-2013, 11:04 PM #5
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Quote:
Originally Posted by Swatgen27 View Post
I was hoping after a good nights rest I would miraculously feel better but that is not the case. I'm a very easy going person and tend to not let a lot of things bother me but what was said has shaken me to my very core and my soul. To be honest I'm still trying to figure out what to do... With my support system gone, I feel completely lost. Over the years I have incurred multiplied of instances of discrimination relating to my CRPS but the prior cases are minor compared to yesterday's cruel comments. I will need sometime to get my thoughts in order so I plan on staying with my best friends house (she is my sister from another mother, lol.) I'm overwhelmingly depressed and I know that just being with her will help me.
Thank you for your kind words and great advice. Your comments touched my heart and the words of encouragement lifted my spirits.
Sarah
Xoxoxo
I'm glad you're with your sister. I know it's hard. You can fight back. Nothing is wrong with you and everything is wrong with the family members that told you to u-know-what. I won't even type it. I know about family members.......my dad, in 8 yrs, has never once asked how I'm feeling. I had 3 back surgeries for RSD and never called to see how I was. My mother doesn't know the name of my condition. I asked her a coupe months ago. I live with her you think she would know by now (8 yrs running) lol. 2 of my closest friends are no longer friends and I knew them each for 30 years (since I was 7 yrs old). They treated me horribly because of my pains. I know family members aren't something that you can no longer speak to but their advice is ridiculous and extremely wrong! Hon there is always hope. It's not a well that dries up.

Post here when you lose hope. Even if it's every day. One good thing is that we ALL understand what you're going thru.

Take care of yourself,
Heather
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Originally in left and right foot
Spread in 2006 and Jan 2014
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Chronic pain going back to 1992

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Old 12-07-2013, 10:55 AM #6
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Quote:
Originally Posted by Swatgen27 View Post
I've been struggling with this crps beast for 7 years. I was blessed to have the opportunity to work until May 2013. My crps spread from my lower half to my right hand, arm, shoulder and neck in April 2013. I can no longer do the things I love and found myself focusing on my immediate family by helping them live their lives. Today, my family said I should end my life so they can get on with theirs.. I've not contemplated suicide until today. This battle will never get easier and without the support of my loved on I feel like David and Goliat. I'm just so sad after everything that transpired today.
Hello Dear Swatgen27

I too focus on family and help my mom, the kids and grandkids out as much as I can. I was super everything before this started. But I would sincerely hope that NONE of my immediate family, all 12 of them would ever be so insensitive, evil and just dang stupid to say something like that to me. God please have mercy on these poor, misguided fools.

Who in your immediate family would say something like that to you ?

My heart just hurts for you and I'm so very angry too. Each person is a precious gift from the Lord above.

Please know that we are are here for you and 'ending it' is not an option for u. I agree with everyone else on here that u need a professional to talk to. A third party not involved in the emotions is always helpful from my standpoint.

Stay strong sweet lady and please keep us posted on how it's going for u...WE CARE about you very much.

Debi from Georgia


I just saw your new post......I am so glad u have somewhere to go. Let your dear sister give u the love and support u need right now.

Last edited by St George 2013; 12-07-2013 at 10:57 AM. Reason: adding additional comments
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Old 12-07-2013, 12:56 PM #7
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Dear Swat,
That was so unimaginably horrible! I was just hoping it was a an over the top "heat of the moment" thing. Just so cruel! You poor dear, you're shaken to the core, but still strong and smart enough to know what you need to do.
I'm glad you have a "sister" to go to and you have us with you always in thought and spirit.
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Old 12-07-2013, 01:37 PM #8
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I was so glad to see your new post..Keep the faith and keep strong..You are Gods child remember ,trust in HIM...
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Old 12-07-2013, 11:45 PM #9
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Wow, I cannot fathom someone saying this to a loved one!! They are supposed to pick you up, not knock you down. I'm so very sorry, but you're life is still worth something even with RSD!! Do not give up, and know that you have plenty here you can lean on. I'm so very sorry.

TK
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Old 12-08-2013, 07:05 PM #10
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Hang in there. There is life after RSD. It's going to be tough without much of a support system but you'll have to be tougher.

Just pray that your family eventually finds the sensitivity or understanding they lack.

Some people think this is all in the mind and they might have just been trying to get you to "snap out of it". Don't give up on them but don't take any of their misguided statements to heart.

Best wishes.
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