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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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I've been struggling with this crps beast for 7 years. I was blessed to have the opportunity to work until May 2013. My crps spread from my lower half to my right hand, arm, shoulder and neck in April 2013. I can no longer do the things I love and found myself focusing on my immediate family by helping them live their lives. Today, my family said I should end my life so they can get on with theirs.. I've not contemplated suicide until today. This battle will never get easier and without the support of my loved on I feel like David and Goliat. I'm just so sad after everything that transpired today.
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#2 | |||
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Quote:
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__________________
Illegitimi non carborundum For he shall give his angels charge over thee, to keep thee in all thy ways. psalms 91:11 |
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"Thanks for this!" says: | St George 2013 (12-07-2013) |
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#3 | ||
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What a throughly evil thing to say. Get out find somewhere else to live and tell them as far as you are concerned they are all dead to you.
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"Thanks for this!" says: | St George 2013 (12-07-2013) |
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#4 | ||
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Seriously? I would find a way to give this craps to them. Sorry but I'm a jerk (insert word starting with be for jerk). Don't take the "easy" way out. I live by a good saying when people act like that around me. God don't like ugly. The person that said that was being a selfish jackass. I would have smacked them with my cane. Don't let their negativity get to you. They are jerks and karma will come back and bite them in the but hard. I've been dealing with this for 10 yrs. You can and will get through this low period.
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"Thanks for this!" says: | St George 2013 (12-07-2013) |
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#5 | ||
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Swatgen.......
So sorry to hear about those comments from your family. I can't imagine how I would feel if I were in your shoes. You may have to make some adjustments in your family life and I agree that you should try talking this out with a good friend, therapist, or a family member that you do trust and love. We're here for you 24/7 too. Post and vent any old time you want! Just the process of writing down your feelings can be helpful. Hang in there. Your life has much worth no matter what others may say or feel. Don't let this monster of a disorder define you. Keep us updated........ |
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"Thanks for this!" says: | St George 2013 (12-07-2013) |
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#6 | |||
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Wow!
What a horrible thing to say ![]() Is there any way you can distance yourself from them...move and cut ties with them?? ![]()
__________________
Zookeeper ~Shelly~ |
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"Thanks for this!" says: | St George 2013 (12-07-2013) |
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#7 | |||
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Wow...just...wow. That is probably the worst thing I can imagine hearing from family. My motto in life is generally that the only people who have the power to hurt me are the ones I care about...and to hear something like that from people I care about would devastate me.
So now you have to decide what you're going to do about it. Suicide...not an option...don't you consider it at all. But perhaps it is time for a new start...a new life. No one deserves to hear what you did...it's cruel, evil, selfish...and you should not be around people like that. You are going through enough without needing that thrown on top of everything else. Keep us updated and know that we are here for you. |
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"Thanks for this!" says: | Jenna Delaney (12-08-2013), St George 2013 (12-07-2013) |
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#8 | ||
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I was hoping after a good nights rest I would miraculously feel better but that is not the case. I'm a very easy going person and tend to not let a lot of things bother me but what was said has shaken me to my very core and my soul. To be honest I'm still trying to figure out what to do... With my support system gone, I feel completely lost. Over the years I have incurred multiplied of instances of discrimination relating to my CRPS but the prior cases are minor compared to yesterday's cruel comments. I will need sometime to get my thoughts in order so I plan on staying with my best friends house (she is my sister from another mother, lol.) I'm overwhelmingly depressed and I know that just being with her will help me.
Thank you for your kind words and great advice. Your comments touched my heart and the words of encouragement lifted my spirits. Sarah Xoxoxo |
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"Thanks for this!" says: | birchlake (12-07-2013), Jenna Delaney (12-08-2013), moosey2me (12-07-2013), St George 2013 (12-07-2013) |
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#9 | ||
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Senior Member
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Sarah, sorry I have been having a much tinier attitude-based family crisis myself, and your posts have put mine into perspective a bit. I can't believe how cruelly you've been treated, and that truly is an evil thing for them to even think, let alone say out loud to you.... I can't imagine how upsetting it all is, but I know it took great strength to write about it and reach out.
As others have said, you need to get away from such monsters and let them live their own dreadfully empty and mean lives without you. I am so glad you have a friend to go to, and are doing just that. You are one brave and resourceful woman, and it breaks my heart that a decent person like you can be treated like this. You must never ever ever believe that sort of crap - it is low, vile and contemptuous. This disease sucks our very souls out sometimes and makes the bottom of that deep dark well seem very close... Remember it is always your life and your choice what you do with it. No one can ever take that right away from you, and you must always believe that you are worth so much more even with all the problems this disease has given you, than they are worth with all their physical health. Worth is not measured by what you can do - but by what you choose to do. Not by physical strength, but by mental strength and heart. Not by actions, but by thoughts and dreams, hopes and kindness. Those are things that decent people value and remember. I wish you all good things. You deserve better, and I believe you will find it away from these people. They might be tied to you by your family tree, but as the saying goes, 'you can choose your friends, you can't choose your family'... Cut the branch of that tree and grow stronger elsewhere. Good luck and I hope we hear of better times ahead for you very soon. I'll be thinking of you. Bram ![]()
__________________
CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | AZ-Di (12-08-2013), birchlake (12-07-2013), catra121 (12-07-2013), moosey2me (12-07-2013), St George 2013 (12-07-2013) |
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#10 | |||
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Co-Administrator
Community Support Team
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Were family member/s really serious when this was said??
![]() Was it said as a tasteless/sarcastic joke, said in anger at the moment, out of frustration? ![]() I just can't fathom anyone saying something like that and really meaning it..
__________________
Search the NeuroTalk forums - . |
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