Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-16-2014, 11:36 AM #1
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Originally Posted by heatherg23 View Post
It's crazy how much we think alike. It makes perfect sense to me. I keep my pain hidden unless I fully trust a person. That would be my brother and my best friend. I even keep my pain hidden from my mother, whom I have to live with because I can't work. She hassles me about not doing enough to "help" the pain. Long story there. I don't care to explain this to others either. I totally agree about you saying I just want to be recognized as someone who suffers but is workin there butt off to keep things as normal as you can. I just want someone who says they care. My mom doesn't even know the letters RSD. She doesn't even care to know and understand what I have. I even stopped talking to 2 of my closest friends, friends for 25 yrs, because they treated me so poorly.... because of my pains. It's hard to trust people and hope they don't judge me. I don't want to be known as the one who's always in pain. That's the main reason I don't want people to know. I can't win.

I'm stuck laying down in my bed, every day, so I stick to myself. Even if I had a choice NOT to I still would be. It's exhausting trying to act normal. My dogs cheer me up so much. Don't know what i'd do without them. Probably cry a lot

Heather
Well said..It is so odd that we all do think alike..I have friends and even family that do not even act as though they care..My own son hardly ever calls..I just want to say we all hurt,and you know it would be a lot easier if someone cared....Hang in there,,we are here for one another..
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