Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-16-2014, 11:48 AM #1
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Well this morning I went to my primary doctor..My level high,using my cane today..My bloodpressure high.145 over 100...he said I really need to keep a eye on that..I also spoke about my weight gain..It sucks..Asked me if I am walking any better??Ya right..I wish..Its so hard.I spoke to him about my PM doctor..He was shocked,but said try to look at it as though I was in his shoes waiting on people complaining all day about this pain,that pain,and trying to figure out who is abusing meds. and was is not..Which I guess I can understand he is human too..I just hope his outlook changes.He told me to hang in there until I get this stimulator and see how things go..
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Old 01-16-2014, 12:45 PM #2
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Well this morning I went to my primary doctor..My level high,using my cane today..My bloodpressure high.145 over 100...he said I really need to keep a eye on that..I also spoke about my weight gain..It sucks..Asked me if I am walking any better??Ya right..I wish..Its so hard.I spoke to him about my PM doctor..He was shocked,but said try to look at it as though I was in his shoes waiting on people complaining all day about this pain,that pain,and trying to figure out who is abusing meds. and was is not..Which I guess I can understand he is human too..I just hope his outlook changes.He told me to hang in there until I get this stimulator and see how things go..
Sorry you are having a high pain day today moosey. Definitely keep an eye on that blood pressure, but it could be higher because your pain level is up. I try to give drs the benefit of the doubt because I know I am a complicated case BUT, if the dr cannot handle patients complaining about their pain to him all day, then he shouldn't be in pain management.

I hope I can find a new, good PM dr soon. I am searching for one.
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Old 01-16-2014, 07:47 PM #3
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Sorry you are having a high pain day today moosey. Definitely keep an eye on that blood pressure, but it could be higher because your pain level is up. I try to give drs the benefit of the doubt because I know I am a complicated case BUT, if the dr cannot handle patients complaining about their pain to him all day, then he shouldn't be in pain management.

I hope I can find a new, good PM dr soon. I am searching for one.
Thank you ..pressure still running high..not having a great day..tired of working feeling like crap..wore out..go to work pain high,feeling sick to my stomach because of pain..no bathrooms to go to..so just have to suck it up
I think you are right about these doctors..I feel the doctors do not know as much as we do,when it comes to RSD...Good luck finding a good one.I feel like during the 1st 3 and a half years I was just pushed around..meds,.ect..
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Old 01-18-2014, 07:38 PM #4
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High BP is normal when going to the doctor...for anybody. Mine skyrockets only when i'm at the doctor. I take mine at home and it's perfect. The nurse calls it the white-coat Syndrome ( white coats.....what doc's wear). It was a waste of a drip to the doc.

As long as your BP is ok when your NOT at the doc don't worry about it.
Heather
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RSD since 8/2005
Originally in left and right foot
Spread in 2006 and Jan 2014
Both legs, arms.
Chronic pain going back to 1992

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Old 01-19-2014, 11:35 AM #5
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When you get home put your feet up. Lay down with your feet higher than your head. Did you go to your Dr right after work? If so that might be why your BP was high. If your PM dr is being a jerk get a new one that listens. I finally found one that listens myself. I will pray you feel better soon. I know how hard this disorder is.
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Old 01-19-2014, 05:18 PM #6
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When you get home put your feet up. Lay down with your feet higher than your head. Did you go to your Dr right after work? If so that might be why your BP was high. If your PM dr is being a jerk get a new one that listens. I finally found one that listens myself. I will pray you feel better soon. I know how hard this disorder is.
its been high every day this week..I have been taking it 2 to 3 times a day.I had a new med. on Tuesday,broke out in hives,and no sleep..ever since I have felt terrible and high BP..I also went off 1 med..But I am wondering if the Celebrex is bothering my BP..I noticed last Friday when I went to PM..I was a little high,but he did not say anything.Then when I went to primary doctor he was concerned..stress and pain do not help...
I sure hope you feel better too.Hopefully we all can find some better doctors..
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Old 01-19-2014, 05:22 PM #7
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High BP is normal when going to the doctor...for anybody. Mine skyrockets only when i'm at the doctor. I take mine at home and it's perfect. The nurse calls it the white-coat Syndrome ( white coats.....what doc's wear). It was a waste of a drip to the doc.

As long as your BP is ok when your NOT at the doc don't worry about it.
Heather
Thank you..I wish it was whitecoat....Its either my meds.. or all pain,stress and weight..I have gained about 20 pounds..when you cannot walk much,ect..its hard to keep it off..plus my meds..made me want to eat more..
I sure hope you get feeling better..thanks for being there..
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Old 01-19-2014, 06:44 PM #8
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Hi moosey,

My BP was high recently when I was at the docs, and now he's gone all twitchy about it... My BP has always been pretty low, both at docs and at home, so not sure what to make of it really. It's so hard to know what symptoms to take seriously and investigate further, and which to accept as CRPS vagaries and try to manage. I'm rubbish with most meds, and the last thing I want is to experiment with any more right now.

I hope you feel a bit better tomorrow moosey. Take care of yourself.

Bram.
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Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

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Old 01-20-2014, 10:17 AM #9
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Originally Posted by moosey2me View Post
Well this morning I went to my primary doctor..My level high,using my cane today..My bloodpressure high.145 over 100...he said I really need to keep a eye on that..I also spoke about my weight gain..It sucks..Asked me if I am walking any better??Ya right..I wish..Its so hard.I spoke to him about my PM doctor..He was shocked,but said try to look at it as though I was in his shoes waiting on people complaining all day about this pain,that pain,and trying to figure out who is abusing meds. and was is not..Which I guess I can understand he is human too..I just hope his outlook changes.He told me to hang in there until I get this stimulator and see how things go..
Hi Moosey!

I'm sorry that you're struggling both with BP and with inadequate pain control. Lack of proper pain control for what we have ticks me off... bad. I'm sorry but if you're in the medical profession, and you're in the business of treating a Pt.'s PAINFUL disease, then treat it. If not, then don't take on these types of Pt.'s and refer them to someone who can help them.

My pain has not been managed properly for a while now and I'm regressing and praying that this doc I see on Friday is a step in the right direction to getting regular relief.

After reading your post I went here http://www.rsds.org/4/resources/pain...hysician_.html

Then from there I went here http://www.medsch.wisc.edu/painpolic...ix.htm#NewYork

I thought this was an excellent site! Easy to navigate with their interactive map. When on their site, scroll down and you'll see the US map, the just click on your state.

I hope you feel better soon and are able to get the relief you NEED and deserve.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 01-20-2014, 05:05 PM #10
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Hi Moosey!

I'm sorry that you're struggling both with BP and with inadequate pain control. Lack of proper pain control for what we have ticks me off... bad. I'm sorry but if you're in the medical profession, and you're in the business of treating a Pt.'s PAINFUL disease, then treat it. If not, then don't take on these types of Pt.'s and refer them to someone who can help them.

My pain has not been managed properly for a while now and I'm regressing and praying that this doc I see on Friday is a step in the right direction to getting regular relief.

After reading your post I went here http://www.rsds.org/4/resources/pain...hysician_.html

Then from there I went here http://www.medsch.wisc.edu/painpolic...ix.htm#NewYork

I thought this was an excellent site! Easy to navigate with their interactive map. When on their site, scroll down and you'll see the US map, the just click on your state.

I hope you feel better soon and are able to get the relief you NEED and deserve.
I am greatful for your words..I hope you get better too..I am taking my BP 2 to 3 times a day..its still high today..Thank you for the sites..
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