Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-26-2013, 09:23 PM #1
Lottie Lottie is offline
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Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Red face Tell me how you balance it

Hi friends, I am not very good at expressing my ideas lately, but I will giveit a go. I tend to keep my pain and mobility challenges hidden. It is partly because I am a private person, partly because I have always been a hard working productive person and don't want to be perceived otherwise, partly because I don't want to be gloomy gus and partly because I don't trust anyone would really understand. Because of this approach, most people outside of my husband and daughter don't have a clue about how much I suffer. But I don't feel up to explaining it. If I had a cancer diagnosis, people get that and would ask "how you doing"? But no one ever asks me. I just want someone to say "I know you must be suffering and I can see how hard you work to keep things as normal as possible ". SO I was wondering if u would be willing to share how you go about balancing your "public face" with your private suffering?

I hope this makes sense
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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