Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-22-2014, 12:56 AM #8
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Nanc Nanc is offline
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
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Quote:
Originally Posted by zookester View Post
Hey Nanc,

I am sorry you are having such a rough time of it! Near the area of nerve damage that caused my CRPS II if I touch that area it will send an ice cold rush down that nerve path even though it feels as if the skin has been removed and someone is pouring alcohol or salt on it BURNING constantly. I really hope that is just your sensory nerves healing normally. One thing you might want to do right away is start desensitizing that area by touching and stroking it with a flat palm, soft cloth etc., this will help the nerves respond to good stimulation and can help reduce numbness that often occurs after surgery along the incision site. I remember my doctor telling me that spread should be treated as a new diagnosis and treated aggressively as soon as symptoms start. That is what I am doing with my arms and they haven't worsened as quickly as my opposite leg.

Sure hope you turn a positive corner soon!!
Thanks Tessa! There is no way I can start desensitizing that area right now. I touch it when I wash it and put bacitracin on it and that is it! That is enough to bring me to tears. You should see these incision sites...kinda nasty looking and a little raw. Ick! I had some nerve damage in my upper back/shoulder area when I had the SCS's implanted. It is a lot worse now

Glad your arms are responding and have not worsened!
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