Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-24-2014, 10:38 AM #8
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
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Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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I feel like that with doctors sometimes too Renee....

I saw my pain doc once and she said "well, it's good to see you're looking really well. Everything must be going well. That's good isn't it." Well. I just burst into tears then and there, think she was quite shocked. When I'd got control again I told her that I had a good gameface now, and I was getting pretty good at looking 'OK'. It means nothing. I like to think it is similar to the old adage about swans....looking all serene above the water, paddling fast underneath... I said, "I'm in pain all the time. I'm exhausted. I've got kids and a job. I work hard to look half normal. Congratulate that if you want to, but don't make the mistake of thinking that because I appear ok I'm not suffering the same as usual." I was nice about it, but she's never said it again.

My GP never comments on how I look, but he has various expressions of doubt, disbelief and boredom that he uses during appointments. He doesn't know anything about CRPS, and hasn't tried to. Grr. Oh for that mile in someone else's shoes...:

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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