Oh Suz... ouch! I don't have any formal Dx of anything other than RSD / CRPS II but my hips are getting VERY involved. Could you share the article that you found? I would love to read it!

Hey Jeff, I have only had one fall and that was NYE when I fainted/collapsed, BUT I feel like the old school weeble wobble toys. Between the drugs, and the unstableness affect the disease has on my legs being so weak and shaky, and I have vertigo, so yes, I bounce around all over the place!

Suz - if you could share the article I would be very appreciative. I have not had my hips xrayed, but I was just telling my husband the other day about both hips hurting so much. Gosh it scares me to think I could have another chronic pain diagnosis.

Hi there
I am in total sympathy with you as I have post chemo (motor sensory) PN which affected my balance for a while. People suggested a wheel chair and a walker but I told myself that I would become too lazy if I did. I opted for a walking stick and have wobbled my way about - walls and door frames have been great. In the early stage I had to go to the oncologist for a review and was in a lift full of people. I jokingly warned them that any groping on my behalf on the way out was purely unintentional. Luckily they all laughed! But at that time and still occasionally now, I have to have three physical points of contact to avoid falling over.
I have been to the shopping centres and tried cheating using the shopping trolley like a walker. It was great but I have still fallen onto my knees using them. One time a man helped me up and asked if I was alright. I was so thankful and embarrassed and I jokingly tried to assure him it happened quite often. He smiled back and said I'll have to stop drinking all that whiskey. All I could do was laugh but I felt like crying on the inside. Stupid PN I said to myself.
All I can do is remind myself of the old chinese saying and pat myself on the back that I didn't let this condition keep me down! Good luck and best wishes to you all
Liz

I am sorry for your struggles. I understand it is hard. Have you talked to your doctor about the loss of balance and what possible things you can do in terms of lets say pool therapy that can help you? I know it is hard to not be able to do things you want to or used to be able to. I feel the same way. I am working on this myself on finding some new things I can do that can add some happiness in my life. Someone mentioned therapy and have you thought of that? I know it wont take the pain and limitations off but it can help you feel less alone and cope with the condition. Hang in there

Try this: http://www.bodyinmind.org/how-should...ce-hodgepodge/