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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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At wits end!

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Old 02-07-2014, 08:21 AM #11
AndreadePalma AndreadePalma is offline
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Quote:
Originally Posted by HeidiB View Post
PS> on a side note I haven't been able to change "my mood" in awhile now was wondering if I'm the only one who's having the problem or anyone else having same issue & how do I fix it? I've logged out done a refresh of the page everything I can think of but noting so thought Id ask you all, thank you all again & I hope you all are having an easier time than me your all in my thoughts & my prayers
I can't figure out how to make a mood for myself. I click on the field that says Change Mood and my only selection is No Mood. I guess I'm a real flat-liner.
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Old 02-07-2014, 08:47 AM #12
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I love essential oils and have a couple of different natural creams that I use too, but they don't really help the pain, but they don't anger my skin and ease the dry soreness a bit. I'd be really interested to know what oils are in the cream, and exactly what the cream is. I'm in the UK, so I might not be able to get it here anyway. I like to give new things a go, after all, you never know...

Bram.

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I spent most of my adult life in an alternative medicine practice (primarily massage). One night during my worst episode of flames roaring off my arm with a burning cold inside, so bad I could barely breath much less sleep and I grabbed a tube of an extremely pure, high grade, essential oil cream that I used on injured patients at the clinic where I worked. I had no expectations having always used it myself and others for sports injuries and muscle strain etc. But I applied it and the next thing I knew I was waking up in the morning and my intense pain was gone. I'm not going to insist it was the cream because I don't know for sure but I think it was at least a factor. It is quite different than other creams and was also very popular with my patients on their varied injuries.

I haven't yet had a new episode of that magnitude to see if I can duplicate that result.

Anyway, I have a bunch of sample packets that I still have since I had to stop seeing patients when the CRPS hit me. If you want I can send you a couple to see if it helps you. If you're interested let me know where to send them. It wouldn't cost you or me anything since I have them and I have a stamp.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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moosey2me (02-09-2014)
Old 02-07-2014, 05:28 PM #13
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Hi Ladies

I found that if I am using Chrome, I can't change the mood but I can do it if I use Internet Explorer. I hope this helps.

Kim

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Originally Posted by AndreadePalma View Post
I can't figure out how to make a mood for myself. I click on the field that says Change Mood and my only selection is No Mood. I guess I'm a real flat-liner.
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Old 02-07-2014, 05:38 PM #14
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If you're using a tablet like me it won't let you. Silly I know .
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Old 02-08-2014, 11:48 AM #15
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Andrea -what essential oil is in the cream? ~Lottie
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 02-09-2014, 08:22 AM #16
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Originally Posted by alt1268 View Post
Can you tell me what else you are taking? I had to end up on a combo of medications. Dialudid though is very short acting. You get the high then it drops you. And most of the time doesn't touch the pain unless you take it continuously.

I ended up on a antidepressant (which helps for pain and sleep). A pain patch. Break through pain med. neurontin. And clonidine.

Like I said usually it takes a combo of meds.
I'd be interested to know as well. Usually it takes a combination to get things managed. Dilaudid is a pretty heavy pain med, but is short acting. I know my doc is trying to slowly change pain meds and go up in strength, because going to strongest early on leaves no room to increase over the years. That is where other medications come in.

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If you're using a tablet like me it won't let you. Silly I know .
^ What she said... pretty annoying.
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Old 02-09-2014, 09:15 AM #17
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Originally Posted by HeidiB View Post
Hi my fellow RSDers, I hope you all are having a good night.
I myself am having a really hard time & have been for awhile just some days worse than others such as the past week so instead of continuing to hold it in I thought I'd vent on here cuz I'm @ my wits end My doc changed my pain meds to 2mg dilaudid trying to help with my pain but it's not worked Ive been on it since the 21st of last month & I was really praying that the change would help but it really hasn't done much more than the perk's I was on & Im to the point beyond tears I just don't know what to do I'm not sure how much more I can take of this it feels like my entire body is on fire in a vice grip & being ripped off all at the same time is the only way I can think to describe it. Im not sleeping sometimes for a couple days at a time because of the pain & I'm starting to feel like I'm gonna just lose my mind, & getting more depressed. I just don't know anymore. thank you all for being here to listen & vent to I'd feel even more alone than I already do w/out all of you & of course my mom & gma.. I hope you all are having better time than me til next time take care
ps on a side note has anyone else had problems changing their mood cuz I haven't been able to change mine for a little while
My heart aches for you.I will pray for ...Its hard changing meds.they act different for each person.I think the meds.are causing a reaction of depression by the sounds of things..Please keep intouch.I have had the last couple of weeks from you know where my -self.different meds. and they are not working..Not sure what to do either.I have to call Monday PM..so I hope you feel better soon..Sending prayers and hugs..

P.s..I am going to try something new..Bought a dollhouse online,because I cannot walk enough to find one in the store,,thought since I have twin grandbabies coming I could build it,and relax me...Maybe you could find something to relax you...Good luck
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Old 02-09-2014, 04:13 PM #18
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What a great idea moosey something absorbing like that makes an excellent painkiller.....better than most meds I've tried anyway! Good luck with it - I mad a dollshouse for my mum a few years backhand thoroughly enjoyed it...

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 02-10-2014, 12:45 PM #19
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sorry to hear about your suffering, I have gone thru hell with my meds before because my body rejects most of them. I recently tried something new for me called CBD oil. The one I use is made from hemp and has no THC, it has given me relief beyond my wildest dreams and has even allowed me to drop 2 other meds. please talk to your doc first, mine wanted me to try a new pill that has CBD and THC for pain relief which I refused, I can't take THC. I ordered my oil from CIBDEX, if that helps. No matter what you try I hope you get the relief you need.
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Old 02-11-2014, 09:17 PM #20
elyzabeyta elyzabeyta is offline
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I'm sorry, just doesn't seem to cut it when you know someone is going thru their own personal hell. It seems like pain meds do nothing. I finally found some relief with stellate ganglion blocks. I was referred to a doc outside of Tampa, FL. Let me know if you want the info.
But I am sorry and I wish you relief
Beth
Quote:
Originally Posted by HeidiB View Post
Hi my fellow RSDers, I hope you all are having a good night.
I myself am having a really hard time & have been for awhile just some days worse than others such as the past week so instead of continuing to hold it in I thought I'd vent on here cuz I'm @ my wits end My doc changed my pain meds to 2mg dilaudid trying to help with my pain but it's not worked Ive been on it since the 21st of last month & I was really praying that the change would help but it really hasn't done much more than the perk's I was on & Im to the point beyond tears I just don't know what to do I'm not sure how much more I can take of this it feels like my entire body is on fire in a vice grip & being ripped off all at the same time is the only way I can think to describe it. Im not sleeping sometimes for a couple days at a time because of the pain & I'm starting to feel like I'm gonna just lose my mind, & getting more depressed. I just don't know anymore. thank you all for being here to listen & vent to I'd feel even more alone than I already do w/out all of you & of course my mom & gma.. I hope you all are having better time than me til next time take care
ps on a side note has anyone else had problems changing their mood cuz I haven't been able to change mine for a little while
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