I have been terrible lately.Sorry it took so long to write and thank everyone .I still have the sores.They are painful.Anyone else here take forever to heal?My life feels upside down right now.I am on so many meds.I cannot function they way I should.Monday I took my last patch of meds.before I went to bed.I woke up for work at 5:30 a.m. went feeling okay still alittle pain,but did not take anything because I wanted to be able to do my job.about 45 minutes into my job, I felt terrible..VERY VERY tired,I could not deal with that.went home,took meds,laid down.Later felt fine..next day same thing..Boy its hard working ....I am at witts end..Either pain or not able to function ..Well today I go to a new PM doc..I have heard good things about this unit.Time well tell.I will keep you posted later..I found out yesterday..I can use my sick time,then have 12 weeks recovery..So I will keep my benefits..Boy oh boy,what benefits..lol..what a joke..I leanered latey,its better to be poor,and stay home..RSD is really hard to coop with.I sure wish I could stay home.Even visiting people is hard.We are going up Sunday to my Aunts,and my Husbands just does not get it.Its really hard to go all day,because of pain,meds,and having heat with me..I cannot make him understand..Do you guys feel like you just feel better cooped up at home than trying to go out?Well I guess that's how it is..Thanks for listening I babballed long enough..TY...lol

Moosey,

I am sorry to hear about the trouble you've been having. I emphathize with you on the lack of understanding - makes it extra tough when the spouse doesn't fully get it. Tough for him (or anyone else) to really understand though without having actually been through it himself.

(Stating the obvious here) - It's definitely easier and sometimes necessary to stay cooped up when things get rough. Personally - I went outside as much as I could tolerate. At the beginning, just a couple minutes of the sun and breathing open air did a lot of good for me.

Workwise I was in a similar boat in that I had a crapton of sick time piled up - was also blessed with an understanding, caring boss.

From reading your posts it's obvious you're one tough cookie. All the best.
VNV

I'm sorry you're having such a tough time moosey. I too have trouble traveling and my family still does not seem to understand why. I've had rsd for over three years now and would rather stay home and walk outside when weather permits, then travel. Sitting in car for long periods of time and then trying to socialize while on all these pain med is exhausting. And with exhaustion and immobility comes more pain and flares from my RSD. Once I'm home I usually go to bed and stay there for a good two to three days until I get my RSD flares under control. I keep telling my brothers and mother that it's just too hard to travel anymore. I am so worn out from the pain and asked them to meet me half way. But they just can't seem to find the time. We live an hour and half away from each other, and it hurts that they won't make the effort. But I'm not going to cause myself more pain anymore for their sake. I hope that your family will eventually understand how hard it is for you to travel and maybe they will come to visit you for a change. So far, except for my son, my family won't make the effort. Hang in there Moosey and take care of you. You need to look out for yourself so you don't aggravate your rsd.
And as for morphine, I hate the stuff. It make me nuttier then I already am. Demoral helps more in hospitals, but they stopped using it. It figures. Oh well try to get some rest and I will pray that things get better for you soon. From your friend, Renee.

Thank you so much for you caring words.I had talked with my hubby and my Aunt and told them how hard it is for me.I know they acted like they know what I mean,but I know truthfully they really cannot unless you have rsd..Oh well love them both dearly.I sure hope your families reach out more often too..I will pray for you all.
On a good note I had a doctor appointment today with PM...I was surprised they called so I went..They were glad I had things already done.So I get to go back on Friday to talk about placement of stimulator..i am so happy.I was really worried I would have to start over..The meds..I take now seam to feel better,but its still hard to regulate them.. Thanks for caring..I sure wish the best for you all.