I am new to Neurotalk. I was diagnosed with RSD/CRPS after a I got injured at work. My friends think because they cant see all of my symptoms, they dont exsist. I felt very alone. After reading some threads on here I know I am not the only one. In my state or my area is not familiar with RSD..


A little about me.. I am 25 years old. In 2010 I was working in a nursing
Home as a CNA, I had just graduated nursing school. A patient decided she wanted to fight staff and an hour and 5 staff members later, we got her calmed down. Some how in all the efforts to get her safetly to her chair from her bed I got injured. Felt a horrible pain frkm my back to my foot. Went to the hospital, they said a bruised hip gave me a checkup date and sent me home. 2 days later my leg and foot were trippled in size. After numerous x rays, MRIs, PT, and boot casts the Drs. Were at a loss. A year later they said the only thing it could be was RSD. They set uo nerve blocks, had the max amount of those I could have. After over a year of a swollen foot and leg all the nerve blocks did was reduce the swelling. So I had the stimulator implanted. ( biggest regret!!) I have been on numerous medications, nothing has helped. Dr said there was nothing they could do RSD wasn't life changing or anything I'd be ok. (I couldn't believe my dr said that!!) and sent me on my way. Workers comp released me and now fighting them for a settlement. So with drs with little knowledge of rsd and now no chance of using my college degree I am completely lost. Well now that I feel like I habe written a novel I will end this with I am glad this forum exsists! And I hope to talk to some of you soon!!

Hola Emily!

I'm pretty new here too, posting-wise. It's a good spot, with good people.

As you can already see, everyone here understands the pure loneliness resulting from this shared condition. Most people just aren't gonna understand the fact that ceiling fans cause pain

Welcome.

Wecome RSDEmily!! Your doctor knows darn well its a life changer. The hint comes when all else failed, then it must be RSD. Which in total reality does not jive with "You're ok and it's not a life changer". Don't fret, many doctors are just reacting to your health coverage, which in your case is WC, which can be rectified.

Welcome to NT Emily! You have come to a great place for info and support. So sorry for what you are going through!

"RSD is not life changing or anything I'd be ok" Really??? You need to get away from that ignorant doctor immediately and get with someone more knowledgeable. The ignorance of some of the doctors out there amazes me. If you can get with a good doctor that understands RSD/CRPS, then you may be able to get your pain and symptoms to a more controllable level. Then maybe you can put that degree to use. I know someone who is a RN and works at a hospital full-time. Part-time she reads EKG's for a life insurance company....she does this from home. Something like that home job may be a possibility for you at some point...hopefully!!

Sorry the SCS didn't work for you. I had two (thoracic and cervical) for almost three years. They did wonders for me for the first year and a half, then I had issues with them and the effectiveness wore off. Glad I got them, they allowed me to work an additional year and a half...just wish they helped me longer. I have had RSD for a little more than 23 years and it is throughout most of my body. I finally had to stop working Dec 2012 and am now on disability. I just couldn't do it anymore.

All the best,
Nanc

Welcome Emily. I'm sorry you are rsd but am glad you found this site. The people here are awesome and you'll always feel like you have friends who understand here. Take care.

Hey, I know that Doctor was not the nicest. None of my doctors were. But thats workers comp for ya! They down play it so they don't have to pay out! I am really glad i joined this site! Thank you so much!!!

We all care about each other I know u had notice it,read all our post and you will learn even if we deal with this condition in different ways we all share same feeling , same sadness and same happiness when we had a good day,you will soon know us and see that we are a big family sharing a dream full of hope,hope for a cure,blessings and always let us know when ur down or happy,that changes our days,believe me, blessings from Jesika

I hope you can learn here like I me.This site is wonderful.Good kind people..With lots of caring love spread here..Everyone is willing to listen and not judge us.We understand where others do not.I have had this monster for four years..Still fighting,working and always trying to spread smiles..The happier we feel,the better we feel..I try everyday to go to work,smile and enjoy the children I work with..Some of them have it worse than I..I am just greatful I can see and hear..Just think it could be worse for us..They are what makes me smile..They show me love and I share it back..Thats how I keep pushing myself..its not always easy..I admit I have really painful days,but I try my best or if its that bad I stay home..Which latey it seems I stay home more.