Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-21-2014, 11:06 PM #1
ginnie ginnie is offline
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Default Hi Renee

I am glad you told your son. We need our families. We need their support. Your son will be in your corner. The apple doesn't all far from the tree. You have great compassion toward others with CRPS. Your son is most likely just like you ginnie
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Old 05-22-2014, 02:57 AM #2
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Good for you Renee. Hopefully you won't have the stress of trying to keep it hidden now...that should help in more than the obvious ways

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Old 05-22-2014, 10:11 AM #3
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Glad you told your son Renee, good for you! I can understand why you kept it hidden until he got through school, but glad you shared it with him. I am sure he is worried about you, but is thankful to know what is going on. Kids are pretty resilient and he will definitely be in your corner. You should not have to keep anything like this hidden from your loved ones.

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Old 05-22-2014, 10:50 AM #4
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Renee,good for you,that will take a heavy weight out of your shoulders,you need to feel free and let things flow like they suppose to,your son surly understand and will support you,don't hide the pain,you will consume on it, let it go and feel free and happy , is not worth it keeping the pain a secret,hurts more and when your dealing with more pain you know how bad it gets,wish you always the best ,with loving prayers ,Jesika
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Old 05-22-2014, 11:13 AM #5
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It's good that you told him. He loves his mother, I'm sure, and wants no harm to come your way and will be there to back you up.

My wife Suzy hid her RSD from me for two years. She was afraid I'd leave her and effected her mentally in a very profound way. She was convinced in her mind I would leave. That was several years ago, since then our stress levels have been cut at least 75%. She is much much better with less stress, and functions better now than I've seen in 10 years. We will celebrate our 30th Anniversary this June.
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Old 05-22-2014, 12:50 PM #6
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Very selfless the things moms & wives do for their families.
That was brave of you Rene' but now maybe some more support
will be good.
There's no way I could hide mine, it was a traumatic surgery
and caused my hand to be deformed as well.
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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Old 05-22-2014, 05:06 PM #7
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Thanks everyone for your kind words. I just needed to let it out. Your support means more to me then you know. My son is doing better then I thought with the news I gave him. He knew I had rsd from the beginning. He saw me after my closed reduction and saw how deformed my hand and wrist was a few months after. But then with time my hand looked more normal and my surgical wounds healed. That's around the time the pain became more intense internally. I never told him how bad the pain I felt every day was. I never told him how debilitating it was. Luckily he was in college most of the time so he didn't see how crippling rsd was to me. When he did come home I took extra pain meds (which I hid from him also) and struggled to sit with him for a few hours to have dinner and watch tv. He didn't understand and would sometimes get frustrated because I would go to lie down after a few hours. How could he understand. He didn't know. I had to wait until he graduated. Luckily he also graduated in three years instead of four by crunching classes during school breaks. I don't think I could hide the horrific pain that I'm constantly in another year. I know you all understand all too well that pain I feel. Hopefully someday we will all go into remission or there will be a cure. Until then, I feel much better mentally knowing that I can tell my son when I'm too tired or in too much pain to do things with him without having to worry about how he will handle it. He called me today and asked how I was. I said for the first time to him not too good because of my rsd pain. I had to cancel my pm dr appt today because it is raining terribly and the weather was elevating my rsd pain. He said to get some rest and I said I would. He was okay with me telling him the truth. As painful as it is to tell him how I really feel, it feels like a weight has been lifted off my shoulders. I can finally be me. A wife and mother and sister and daughter who has rsd and is in constant aching, stabbing and burning pain. A person with rsd who doesn't have to hide the pain anymore. Thank you all again for being my friends. I need your support as much as I need my families support. Take care and I hope you all have a pain free as possible day today.
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