I told my son today all the things I've been trying to hide from him for the past three and a half years. The unrelenting pain that I cannot hide anymore. I didn't want him to know, but I just can't pretend anymore. The pain is too excruciating and my heart is hurting in more ways then one. After my last surgery I've had irregular heartbeats and chest pains. I have to go to a cardiologist SOON. It also hurts because I told my son today how much pain I am constantly in and how the drs said that all they can do is help me to control the pain now is with meds. That there is no cure and no sight of remission in my near future. I think the only thing more painful then having rsd is telling your child that you have rsd and that the reason you go to bed so early (instead of staying up talking to him like old times) is because you don't want him to see you curled up in a ball crying while your skin feels like it's on fire. It broke my already tired and hurting heart to tell him, but it was time. I waited until he graduated college last week. I didn't want to worry him while he was there. I wanted him to be happy with his friends and focus on his studies. So now he knows and he's worried about me. But he seems to be handling it as well as can be expected. He is even trying to help me find a new pm dr who may try new things to help me. A dr who hasn't given up on me. My son is stronger then I thought. He said I should have told him sooner. That he can handle it. I hope he can. I am so proud of him. And though I still feel like hiding it was the right thing to do while he was in college, I am so very glad that I told my son today.

This is for you Renee!

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I am glad you told your son. We need our families. We need their support. Your son will be in your corner. The apple doesn't all far from the tree. You have great compassion toward others with CRPS. Your son is most likely just like you ginnie

Good for you Renee. Hopefully you won't have the stress of trying to keep it hidden now...that should help in more than the obvious ways

Bram.

Glad you told your son Renee, good for you! I can understand why you kept it hidden until he got through school, but glad you shared it with him. I am sure he is worried about you, but is thankful to know what is going on. Kids are pretty resilient and he will definitely be in your corner. You should not have to keep anything like this hidden from your loved ones.

Hugs,
Nanc

Renee,good for you,that will take a heavy weight out of your shoulders,you need to feel free and let things flow like they suppose to,your son surly understand and will support you,don't hide the pain,you will consume on it, let it go and feel free and happy , is not worth it keeping the pain a secret,hurts more and when your dealing with more pain you know how bad it gets,wish you always the best ,with loving prayers ,Jesika

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It's good that you told him. He loves his mother, I'm sure, and wants no harm to come your way and will be there to back you up.

My wife Suzy hid her RSD from me for two years. She was afraid I'd leave her and effected her mentally in a very profound way. She was convinced in her mind I would leave. That was several years ago, since then our stress levels have been cut at least 75%. She is much much better with less stress, and functions better now than I've seen in 10 years. We will celebrate our 30th Anniversary this June.