Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-02-2014, 06:26 PM #7
Lottie Lottie is offline
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Join Date: Nov 2013
Location: United States
Posts: 363
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Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
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Toepain, thanks for this great post!! So happy for you that you have improved and you are doing such a great job of taking good care of yourself. Well done. Everything you say is exactly right. It should be the mission of each of us.
Soccer? Wow. Impressive. I was an amateur tap dancer before CRPS struck, taking weekly lessons, occasionally performing on stage. I was doing it for the fun of it. It took many months before I could get my shoes back on. I had to get my mind past the pain, past the self-conscious feeling of not being any good anymore, sometimes I felt like an idiot for even trying to tap again. BUT, now its been 2 1/2 years and I dance when I feel up to it, sit it out when its not a good day for dancing. I have to remind myself not to make a big deal of sitting out and give myself lots of credit for when I CAN dance.
One of the hardest things is drawing that strength from within. I do not get it from those around me. People around me are too darned worried about their own discomfort they feel when they see how I have changed, so nobody says anything to me. I hate that part.
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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