Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-22-2014, 07:42 PM #10
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Angelina55 Angelina55 is offline
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Angelina55 Angelina55 is offline
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Join Date: Feb 2013
Location: Post Falls, ID
Posts: 175
10 yr Member
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Those are amazing ideas!! I should have been keeping better track of my timeline, medications, etc.. since this whole thing started. But you don't really want to accept that it is real, I guess, so I just tried to keep putting it behind me. I think I definitely need to start taking a more hands on approach to my health. Thank you!


Quote:
Originally Posted by catra121 View Post
I always found that just bringing a notebook was great. In the notebook I had several pages:

1. Current medications and doses and things I tried but no longer take. Also any treatments that helped or were unsuccessful that I've tried.

2. Timeline with important dates (date of injury, dates of procedures, dates new symptoms started, etc).

3. List of current symptoms and notes on whether they are all the time or intermittent.

4. My goals for treatment.

5. Any questions I have or things I want to go over with the doctor.

I find that having all of these things with me and written down prevented me from forgetting things when I was "in the moment" at appointments. It also helped the doctor to have all the information in a clear and thought out way. Sometimes they would photocopy these things...especially in a first visit...but I always brought them with and always update the questions/things to go over page for each visit and put the date at the top. It helped to bring a pen with too so I could write down the answers to those questions.
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catra121 (07-24-2014), eevo61 (07-23-2014), visioniosiv (07-23-2014)
 


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