Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-03-2007, 10:33 PM #91
JOAN_M JOAN_M is offline
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i knew you would say you were breech ... do you know all babies are checked for hip problems at birth now? and especially breech ones. could have saved us! i was happy when i learned that in nursing school.
i do not think it is bad you are sending your husband out! i think it is perfect for both of you!! my husband golfs, thank God!
i know the babysitting is hard, but enjoy what you can and then send the little one home. we can only do waht we can. it is exhausting.
and i love my crafts. my girlfriend started me quilting, and i have sewn in years past, so it was easy to pick it back up, and i love it but it is a bit tough on the arms and hands and back. i do the hand quilting part in short periods or i suffer for it. but the machine stuff i can do pretty quickly. i have done and/or do it all, crochet a lot, knit a little, do floral arranging when needed, and i have done some ornaments. i like variety. you should try the quilting. start small. you could quilt ornaments or a nice table runner for your new apartment. they have some nice patterns.
wel, i'm off to bed ... love, you hip sister, joan
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Old 09-04-2007, 06:25 PM #92
sue k sue k is offline
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Hi Joan,
I made sure my girls were all checked as soon as they were born. Even my grandkids.
My mom said that this is something that runs in familys. I don't know if that is true or not. I had my girls checked out when they were born. I wouldn't let them leave the delivery room until their hips were checked. I even made sure my grandkids were checked even the boys. My cousins daughter on my fathers side of the family had the same thing. She was lucky, they caught it right away. It always made me wonder why they didn't take me to Shriners Hospital. My father was a Shriner. I worked there for 5 years before the hip replacement. I am going to join the quilting class at church. I love the quilts look.
your "hip sister"
Sue
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Old 09-04-2007, 09:57 PM #93
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HI Sue,
i had my kids x-rayed to make sure! ha! i was so afraid they would have it. i had heard it does run in families too, but also is common with breech babies. you and i took no chances and that is a good mother for sure. we did not want our children to go through anything like we did. it was so hard, wasn't it? i always watch my grandsons run and play at the age i was so confined and i am so greatful that they are able and that they do not know the feelings of those bosy casts. i always think ... yes, that is how it should be, to run and be free and not have a care in the world. we did not get that. it was a loss of our youth.
i always wondered why my family did not take me to boston?? i would have been so much better off. but actually they would not have taken me anywhere except that my grandfather insisted.
oh well water under the bridge ... now we get rsd ... so much better, eh? NOT!
let me know how the quilting goes. i hope you love it.
love, your hip sister, joan
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Old 09-07-2007, 12:33 PM #94
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Hi Joan,
In some ways I think we are better off that we have been in pain all of our lives. I think that we can handle (kind of) the pain a litle bit better. I watch my husband when his back and neck are acting up and he can do nothing but lay down. I always try to move around and get something done. If I didn't, I would be in bed all the time. Yes it hurts like crazy but Iam not going to give in to this. You and I are so much stronger for what we have had to deal with. In some ways Iam thankful for that. I can't belive that we have one more thing in common. My grandfather was the one who was watching the home movies and noticed the way I was walking. He told my parents to get me to the doctors right away. He was the best. I miss him so much. When he died, I was a week away from having my youngest, Danielle. She was due on my birthday the 15th. Well when my husband told me that he had died, I went into labor. She was born on Jan. 9th at 1:08am and he died on Jan. 8th at 1:08am. Sorry for going on so long but my grandparents were the most important people in my life.

Love "your hip sister"
Sue
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Old 09-07-2007, 10:42 PM #95
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hi sue,
sometimes i get the shivers when i read your postings. my grandparents were the most important people in my life also. they were the ones i wanted to be like and the ones i wanted to be with. my papa died when i was 14 and it was a trauma to me, but my nana lived into her 80s and was my best friend. i try my hardest to be that kind of gramma to my grandsons. they are hard shoes to fit into, but i do my darndest.
i know what you mean about our having a high pain tolerance because we have had pain all our lives. my doctor once told me it is a curse too though because i will go and go despite the pain, and pain is a sign to stop and take notice of what is going on. but i kind of like that i can fight it. it makes me feel in control. i can feel pain and separate it from the rest of my body, and i know it is there, but i can just live in the 'no pain' zone ... for a while at least. when it catches up with me i suffer but by then i usually have done what needs doing! ha!
lovingly, your hip sister, joan
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Old 09-15-2007, 04:21 PM #96
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Hi Joan,
Just wanted to check in. Its a busy weekend for us. Kaitlyn is getting baptized tommorow. I have alot of cooking to do for the coffee hour after church. I've had people over the house driving me crazy for 2 days now. The pain I had the other day is better. It had to be the weather. Where did your daughter register? If its alright with you, I'd like to get something for the twins. If you don't mind giving me your address, I could send something for her baby shower. I hope your well. I've got to go cook some more.

Love,
Your hip sister Sue
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Old 09-15-2007, 09:09 PM #97
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hi sue,
hope the baptism is wonderful. let me know how it is, okay?
glad the pain is better. i know you had a few tough days.
my daughter loved the story of the birth of your twins! oh she is glad for all the new technology! ha!
i will e-mail you soon. love, your hip sis, joan
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Old 09-17-2007, 11:11 AM #98
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Hi Joan,
The baptism was wonderful. My mother made the dress and Kaitlyn was so cute. As soon as she got up there she started playing with the water splashing it around with her hands. Everyone in church laughed. Then the minister took her and walked her around to show everyone the newest member of the church. Kaitlyn loved the attention and smiled at everybody. I was so proud. Well I have to watch her in a little while. I better get things done around here. I hope your well.

Love
Your hip sister
Sue

Last edited by sue k; 09-17-2007 at 11:12 AM. Reason: spelling
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Old 09-17-2007, 10:19 PM #99
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Hi Sue,
Glad To Hear The Baptism Went Well And You Were Well Enough To Enjoy It. What Type Of Church Was It With Such A Nice Minister?
Hope The Babysitting Went Well ... I Know It Can Be Exhausting For You.
I Had Aidan For A While Today. He Is 5 And Busy. Tomorrow My Son And Daughter in Law And The Two Little Ones, Owen [7] And Aidan Are Coming After School And Staying For Supper. My Neighbor's Daughter Is Feeding Her Snake A Mouse And The Boys Want To See That ... Now I Pet The Snake But Watching That ... I Don't Think So. Yuck! But Boys Are Boys ... And Owen Is My Little Scientist. We Are Always On Line Studying Something ... Animals, Weather, Planets, Bugs, You Name It, He Wants To Learn All About It. So It Should Be Fun.
I Have A Doctor's Appointment, Pcp, Tomorrow At 1:30, Just A Check In ... No Problems, Just The Usual.
Well, I'm Off To Bed. Love, Your Hip Sister, Joan
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Courage ... doesn't always roar, sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

Last edited by JOAN_M; 09-17-2007 at 10:20 PM. Reason: SPELLING OF COURSE
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Old 09-19-2007, 05:43 PM #100
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Hi Joan,
The babysitting was and still is crazy! My daughter has been working everyday except for on Sunday, the baptism. I have them everyday this week and I am so tired. They have so much energy and I just can't keep up. my other grandaughter, Jocelyn is really sick. She was showing signs of a cold so her mom took her to the Doc. Well it was worse than a cold. It got into her left lung and she has pnemonia. I think I spelled that right. They almost admitted her to the hospital but they gave her a good dose of Zithromax and said they caught it in time. She's still not out of the woods yet. If she isn't better by tommorow, they will put her in the hospital. I feel so bad for her she's only 4. Iam going to worry all night. I hope your well.

Love
Your hip sister Sue
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