Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-07-2014, 02:39 PM #10
Firedancer79 Firedancer79 is offline
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Join Date: Jul 2014
Location: Indiana
Posts: 18
10 yr Member
Firedancer79 Firedancer79 is offline
Junior Member
 
Join Date: Jul 2014
Location: Indiana
Posts: 18
10 yr Member
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Hello,

You are smart for seeking answers, as this disease can totally devastate.

It sounds like you are managing well, considering you are on little medication and are able to stay active.

The spinal cord stimulator might be a smart thing to try if you are not wanting to try additional medication.

However, I don't want to scare you, but I am proof things can go very wrong with the surgery and you should be prepared for what could happen. In my case, there was lead migration, and infection, and my unit had to be removed. In addition, my crps has gotten much worse. It is now considered full body and intractable.

I'm 35, and have never drank either. I'm pescatarian or "picky" as my mom would say.

I have also heard of people who have wonderful things to say about the stimulator. So, I would be cautious as there are more risks involved with the stimulator versus trying a lidoderm patch, for example. Just keep in mind it is still an imperfect surgery.

I wish you the best of luck and hope you get the answers you are seeking,
Wendy
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