I found out about them thru Barby Engel's you tube. She lives in AZ but flew all the way to Florida for the initial inpatient but gets her boosters in AZ, so I wrote them. They originally said they were gonna start the inpatient procedure but decided to hold off and they are now "kicking off" their new 10 day outpatient procedure. I will be there until Oct 18 a full month an a half, but I have family there and driving back & forth from San Diego would be harder on me. I am excited and nervous at the same time. If you want I can keep you a breast of things (preferably the right breast) lol
take care and Smile it helps with the pain

And Shelbie is going to keep me posted on how it goes because I plan on going to their 5 day inpatient program once they have finished their outpatient series of programs! From talking to their staff, it's looking like it's going to be more toward the end of the year or early next year, but I am willing to wait. I've been doing some checking around on other 5 day inpatient ketamine programs and FPH still has the best, in my opinion (with regards to follow-up, boosters, screening and the credentials of all of their doctors are top notch).
Yay Shelbie....so excited for you!!!!

YAY Loves! ur the best! we could be a crime duo! we could be called Loves Shelbie...or Terriers4u
Smile and Laugh my friend

That is awesome to hear. Please keep us updated on how it goes!

Hi!

I'm coming in late to the conversation, but I wanted to let you know that the inpatient hospital stays are actually much better than the outpatient infusion clinics in that while you are receiving the ketamine over a 24h period it's allowing it to "stack" in your system and not allowing your body to take a break from it, like you would if you did the outpatient infusions (your body would take an 18h break in between each infusion). My 12-year-old does the ketamine outpatient infusions 4 days a week (for 4 hours) every 4 weeks and has done the hospital inpatient infusions 5 times now (every 4 months). She also takes ketamine orally twice a day in the form of a lozenge that was specially compounded for her at one of the pharmacies here. Perhaps that's something that the doctor could think of for you as well? Oh - we are in San Antonio, TX. Our doctor is Donald Bacon. He's a pain management specialist/anesthesiologist and works with RSD/CRPS patients all the time. He has a ketamine infusion room in his office - the only one in the city.

I hope this helps you!!! :grouphug

Catherine

Thanks Catherine! That is helpful!

Hi again,


Wanted to let you know I just had my 2nd high does(500mg) Ketamine infusion therapy outpatient done 2 days ago...pain level is a 1 still so far. My infusions have been 4 weeks apart for now, this one could have been 3 weeks but I decided to tough it out 1 more week for some reason. Still on 300mg Lyrica, 75mg Topamax and other meds...hoping to stretch this one out for 4-5 weeks.

Hope your treatments are going well!!

FYI...I am being treated at a military hospital so treatments maybe done differently.(? not sure the difference between private and military.)

Best to all....Terri

That's awesome that you are able to stretch your treatments out so far Terri! I am jealous. Do you mind me asking where your CRPS is at and for how long you have had it?

I, too, receive the "high dose" outpatient infusions, but mine are every 2 weeks and the longest mine has lasted so far has been 10 days with a zero pain level (like I am in a "mini remission"), Each time my PM has upped my infusion (one before was 500 mg). My last infusion was 600 mg(this week). For my CRPS meds I take 600 mg of oral ketamine every 8 hours, along with 100 mg of Topamax, 12 mg of Zanaflex, 70 mg of Fosamax once/week and 3 mg of Clonazepam. I am waiting to get into a 5 day inpatient ketamine program, which does not start until the beginning of next year. My PM is highly recommending this for me and he believes I have a true shot at remission. My CRPS started in my left foot and ankle and has spread to my entire left leg and now the thoracic area of my back (due to a sympathetic lumbar nerve block). My symptoms started in late December 2013 and I was diagnosed via a 3 phase bone scan in February 2014.

Best wishes with your infusions and I hope they work for you and you are able to live as pain free as possible!

~Loves

I have CRPS in my right foot,ankle,leg and hip. Started after ankle surgery in May 2014. I was supposed to have a lumbar nerve block done a month ago, but I was diagnosed with a DVT in my right leg and put on Xarelto(anti-coagulant) so no invasive procedures are allowed until I am off of the Xarelto. This is why My pain Dr has me doing the Ketamine infusions so early in my treatment.

I should have done my ketamine treatments 3 weeks apart, but I wanted to see if physical therapy, mind-body therapy and Qi-gong type therapy could calm the fire...too early in my education still.

Wishing all the best of luck in your quest of peace and stillness with your RSD/CRPS.

Terri

Loves terriers,

Where are you getting your infusions?

Billy Alexander