Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-09-2014, 01:55 AM #11
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Only need to take few step at the time ,one day you,rest until you feel better and do a little you want to do than retrain your brain to stop and rest again so thing a don't get out your hands ,just remember ,few steps at the time , with love ,jesika .
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Old 10-10-2014, 12:21 PM #12
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Thank you all for your kind encouraging words.....they are much appreciated. I hate knowing that anyone suffers from the pain of this condition but I am glad someone understands
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Old 10-12-2014, 02:07 AM #13
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I thought you had mentioned sleep but then I couldn't see it in the other post Before getting on the right combo of meds I had major problems sleeping I tried Ambien for a while, which I advise against strongly. My doc eventually prescribed something with Melatonin that I had no side effects with Sorry--it's been years and I can't remember the name. I also found a CD that was to help put you to sleep by relaxing you, and that sucker worked like a charm. There are many versions out there. At what point I tried low impact yoga that seemed to help me relax, as well as learning to meditate and breathe deeply. You might also want to undergo a sleep study if you can't find meds and/or coping strategies that work for you. If you go without sleep for long enough, it becomes a vicious cycle and your body and brain really need rest!
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Old 10-12-2014, 11:56 AM #14
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I hardly sleep...my dr gave me ambien but said to only use it as needed and that he won't refill it. It works and I like it butidthinktheav rather find a way to sleep without meds esp if my dr won't refill it. Ive tried herbs and melatonin but to no avail. My mind just focuses on the pain while I'm laying in bed.
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Old 10-12-2014, 12:06 PM #15
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Quote:
Originally Posted by Hannajane View Post
I hardly sleep...my dr gave me ambien but said to only use it as needed and that he won't refill it. It works and I like it butidthinktheav rather find a way to sleep without meds esp if my dr won't refill it. Ive tried herbs and melatonin but to no avail. My mind just focuses on the pain while I'm laying in bed.
Sometimes it helps me to put in earbuds for my ipod and either listen to an instrumental playlist I've put together that relaxes me or an audiobook...that can help me sleep or nap because it helps take my mind off the pain. I find it works better if I use the earbuds vs having it play on a speaker...drowns out my thoughts of the pain better. Doesn't always work...but more often than not it does help me sleep and even if I don't sleep...it helps me relax and rest.
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Old 10-16-2014, 06:52 AM #16
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Do you have earbuds that are comfortable to lay on? I've tried this method several times but the earbuds were not comfortable. I even bought bedphones and they kept falling off....it sidetracks my attention but I still don't sleep lol
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Old 10-16-2014, 10:34 AM #17
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Thanks for let it me know ,I won't spend money on it as well, my painsomnia is getting In many days out of control ,but I try my best to cope with the days and nights ,hard job to do and no pay off at all.
Loving. Gentle soft hugs,Jesika .
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Old 10-16-2014, 10:54 AM #18
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Do you have earbuds that are comfortable to lay on? I've tried this method several times but the earbuds were not comfortable. I even bought bedphones and they kept falling off....it sidetracks my attention but I still don't sleep lol
I have actually found some. May favorites were some Sony ones I got from Target around the holidays for $7...but I snipped one of the wires while gardening and that was the end of those.

Now I have a set of iHome earbuds from Kohls. They are comfortable for me while sleeping but the sound isn't quite as nice and the Sony ones I had before (but I'm not a snob about such things).

One thing to note I guess is that I do have to change out the buds for the smallest ones so they are more comfortable (I have pretty small ears). I would make sure to try the different size buds that come with the headphones to try and get the best fit. They were also both the kids with the flexible, rubber buds...not the hard kind. I can NEVER get those kind to stay in my ears or be comfortable...the rubber ones mold to the shape of my ear and fit snugly as long as I have the right size bud in my ear.
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Old 10-16-2014, 11:17 AM #19
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I normally left my iPad in the lower volume possible to listen some relaxing music , I will try the ones from target Catra I'm sure you are tested twice so they are okey!!. they are baby approved! good day to all and loving hugs from Jes .
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Old 10-16-2014, 07:01 PM #20
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I am not at all a sound snob lol but I do sleep on my side so have constant pressure on the earbud....I'll look at target too...can't hurt to add to my collection. I also have a headband type thing that has built in headphones but they move away from my ear as soon as I fidgit....and I fidgit a lot since my surgery
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