Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-12-2007, 08:32 PM #16
RSDmom RSDmom is offline
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Join Date: Dec 2006
Location: Wisconsin
Posts: 45
15 yr Member
RSDmom RSDmom is offline
Junior Member
 
Join Date: Dec 2006
Location: Wisconsin
Posts: 45
15 yr Member
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The multi-disciplinary approach to helping my daughter that our clinic has taken very much includes a psychological component. This is not to say that my daughter's pain is in her head--the psychological approach that the team has in place is to talk about how we as a family deal with our new life, how she can learn coping techniques, stress reducing techniques, and other issues that come up. She also needs to work on understanding what it is like to have gone from being a popular girl to having NO friends and how to reintroduce herself to not only social but school life.

I also wanted to add a comment that it probably is different when a child gets RSD because, yes, there are more chances that it may, for whatever reason, not return after flaring. And that yes, llife hasn't been established as in career and spouse etc. BUT, there is a different reality we face. All that has been lost. All hopes and dreams to have that chance at what ever job you want, whatever travels you want to make, whatever relationships you want to have. So much grief over never having a chance at so much.

As a mom, I see her peers playing sports, having boy/girl friends, dreaming of careers without restrictions, even just going to school--- I see groups of kids walking down the street laughing, knowing that she really can't do that.

We move on and adjust our lives. Psychological help is important for that. I also dream of a day, that she may not have to suffer the emotional and physical pain of RSD and if this study helps, then I will be paying close attention.

Thanks for listening....


We also had tons of questions about how they could tell what emotions rats had!
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