Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-23-2015, 08:01 AM #15
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Littlepaw Littlepaw is offline
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Littlepaw Littlepaw is offline
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Velkyn,

One of my doctors expressed a preference of neurontin over lyrica because the lack of loading time made the side effects present a little differently. Still I was one of those who got depressed on it. Nortriptyline at a low dose has helped with the burning/buzzing. 25mg made me dizzy but I tolerate anything under 20. I am pretty small and also sensitive.

TENS seem to be used by some. I will sometimes use mine more like an SCS placing one set of pads on either side of L4-5 and another at the base of my skull.

Just got a new compound cream Ketoprofen 10%, Ketamine 4, Gabapentin 6. It is my favorite so far! These percentages stay creamy and absorb well. Pharmacy put in just a dab of DMSO to help absorption.

Many cities have agencies with free or sliding scale counseling. Your local United Way should have a list. Strange to me that the therapist you saw was weird about filing. Of course A medical diagnosis like RSD won't work, neither would diabetes. For insurance to pay you have to be assigned an Axis I disorder. However this can usually be an Adjustment Disorder (due to illness, injury) instead of something stronger like Major Depression. Sounds like they didn't want to do paperwork or weren't comfortable giving provisional diagnoses.
Keep looking. I think this was a fluke. There are caring competent therapists out there.

If you are comfortable with your docs and don't want to switch I would just go armed with info and things you want to try. I had to ask my neuro for my topical, I even specified trying the specific combo and he said sure.
Keep at 'EM Velkyn. We all have to. No one is more invested in the patient's recovery than the patient!

Sending Healing Love, Littlepaw
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velkyn (04-23-2015)
 


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