Man, I feel for you, it is scary. As Iam sure it isn't good for me but I still refuse to let myself believe it. Which is probably why I'm currently sitting here in complete shock that I can't draw anymore (its in my right hand and wrist and moving up my arm) and on the verge of tears....I think it's sinking in. Anyways I've fou d this place such a blessing. It's so important ( in my opinion) to have people to talk to and ask questions. I always do. Then go away feeling better! There aren't many people I find in my daily life who have even a clue what crps/rsd is let alone finding someone local who has it.
Good to meet you! And I know you will find what you are looking for here!