Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-22-2015, 07:44 AM #10
krmitdfrog krmitdfrog is offline
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Join Date: Apr 2015
Posts: 30
10 yr Member
krmitdfrog krmitdfrog is offline
Junior Member
 
Join Date: Apr 2015
Posts: 30
10 yr Member
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Quote:
Originally Posted by happygirlpa View Post
Hi Chris, welcome to the club. Sorry to hear you are having a terrible time right now. I've had crps type 2 for 5 years. Your story sounds alot like my own experience. It started in my right leg. Its from lumbar spinal nerve damage after lumbar surgery 2 lower discs removed, blah blah blah. Anyway, my right foot n ankle swelled, turned red purple , searing pain just like alot of folks experienced. Couldnt sit down without it turning purple, could stand either. Right side abdominal pain, hip pain, all the way to my foot. Went on to develop sensitivity to bright sunlight (need sunglasses all thetime now), then digestive issues- acid reflux n irritable syndrome, dizziness when i go from lying down to standing, anxiety, muscle twitching spasms, cramps, and buzzing all day n night, then to top it all off, i get hypothyroidism, b-12 deficiency, and calcium deficiency. Seemed like a huge windfall of problems and i never had health problems before. I saw all different specialists for each individual thing. It wasnt until i saw a rheumatologist 8 months ago that told me all these things were linked to something called CRPS, and i have fibromyalgia too! The rheumy referrd me back to my primary care doctor. I guess ive finally gotten to where i want to see what other types of treatment is available. This crps has spread to involve both legs and my arms and my strength n stamina afe severely impacted. I just thought i would share my storywith you. It was very scary when all these things kept cropping up not knowing why or how. At least now i understand and i think this has stabilized for the time being. Hope my story helps.
Omg!! That sounds exactly like me to the T. I honestly believe mine started in 2009 or 2010 when I tore the ligament in my ankle for the 2nd time and sprained my lower back both while playing basketball. It just got real bad from hitting my foot on vacation last year.

Did the Dr let u know it was spreading internally or just u know it did? For me I know it is. Everybody think I'm a hypochondriac but I know I'm not. Also, did u get written paper stating u had CRPS?
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