Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-20-2015, 07:53 PM #7
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Littlepaw Littlepaw is offline
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Littlepaw Littlepaw is offline
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Hi Julie,

I think your post might get lost in here with pictures and am thinking you meant for it to go out generally. I let a moderator know that it may need to be moved so you get enough exposure for meaningful answers.

It is very hard not having a timeline of when you will get better, when you will be able to stand, when you will have less pain. My best advice is to take it day by day. You will make progress but it may not be at the rate your doctors or therapists think it should be and certainly won't be at the rate you want it. Which was yesterday right?

Progress does come, sometimes in tiny baby steps. Keep things gentle on your system. If you swell a lot then having a dependent limb that you stand on 8 hours is Not realistic until things get further along and more settled. Definitely Get in the pool if you can, ask for aquatherapy. It is great for reducing swelling and improving circulation.

I am glad to hear you are in PT, that's a great start. Do all you can without flaring overly and keep up the good work! I can't answer the nerve block question directly but from what I know relief is pretty quick from the anesthetic and then another boost sometimes a bit later as the steroid kicks in. I don't know how long recovery is. Short term memory issues are common, especially in the beginning and are part of your brain being overloaded with nervous system activity. Meds can contribute too. Go easy on yourself and try to note if it is worse after any meds in particular.

hang in there Julie, we're rooting for you and hope you find relief soon,
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Last edited by Littlepaw; 09-21-2015 at 03:17 PM.
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