Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-10-2015, 10:04 PM #1
RSD ME RSD ME is offline
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Default change of seasons and rsd

this is such a hard time of year for me when the seasons start to change. there is a chill in the air tonight and i am really feeling it. my rsd is starting to flare up and i gave a feeling its going to be a long night. fingers are starting to swell up. i overdid it today too and need to slow down a bit. hopefully tomorrows weather will be better. thanks for listening to me vent. i know you all understand. wishing you all a pain free as possible night tonight.
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Old 09-10-2015, 10:25 PM #2
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Hope you get some good sleep tonight...thinking of you.
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Old 09-11-2015, 05:43 AM #3
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RSD,

I am so sorry that you have more pain. I hope you are better today.

On these lovely days it is easy to do too much and then suffer later. My RSD pain is not much worse from all my activity, but I have new muscle pains and twitches from it. I could barely drag myself into the bathroom this AM.

At my last PT appointment she told me to ice my knee. She really does not believe that ice is verboten for RSD. She thinks I just don't like ice. Everyday is challenging with RSD. Now we have to face changing weather, but it is comforting that we are facing it together.
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Old 09-11-2015, 03:05 PM #4
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RSD,

Hope you have been able to get some sleep.

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Old 09-12-2015, 10:48 PM #5
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thank you all for your kindness caring and support. i am still struggling with the weather changes and my rsd pain but am a little better today then the last few days. i just try stay as warm as i can. i have my heating pad by my bed and drink lots of green chamomille tea.
i don't use ice because i was told it could further damage rsd nerves and have had that happened already to me at pt when my pt put ice on my wrist after sessions and it started to further damage my nerves and increased my pain and decreased my mobility. my pt didn't know any better and i didn't either at the time because rsd was still new to me but i know better now.
i am not a dr but if i were you biobased, i would get a second opinion about ice and rsd before using ice on rsd site. i don't want you to have more damage to your nerves and more pain like i did if you can avoid it.
thanks you all again for being such great friends. i am so lucky to have all of you as my friends. i hope you all have a peaceful and a pain free as possible night tonight. sleep well my friends.
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Old 09-12-2015, 11:44 PM #6
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RSD ME- I totally understand about the weather change. As much as I love fall I dread the oncoming cold. I know I will be living under my heating blanket with my heating pad wrapped around my arm. Because of the RSD I cannot wear long sleeves, so I freeze my a## off all winter.

I hope you get a good night's sleep and the weather stays warm for a few more weeks.

P.S. Just noticed that my new puppy chewed the cord on my heating pad! Good thing she's cute
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Old 09-12-2015, 11:49 PM #7
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Quote:
Originally Posted by BioBased View Post
RSD,

I am so sorry that you have more pain. I hope you are better today.

On these lovely days it is easy to do too much and then suffer later. My RSD pain is not much worse from all my activity, but I have new muscle pains and twitches from it. I could barely drag myself into the bathroom this AM.

At my last PT appointment she told me to ice my knee. She really does not believe that ice is verboten for RSD. She thinks I just don't like ice. Everyday is challenging with RSD. Now we have to face changing weather, but it is comforting that we are facing it together.
Ice is never recommended in any literature published concerning RSD. In fact it is highly warned against using. I was treated for 8 months with ice packs daily, even strapped to my ankle & calf. I know that is one of the reasons for the severity of my pain! It damages the capillaries and creates even more havoc than already exists. They iced me in PT & my Dr told me to ice to relieve the pain. He didn't believe me in the beginning that it was 24/7 or as severe as it was. He thought I was faking to get WC benefits.

Lukewarm Epsom soaks are great though, and highly recommended by little ole me.

I also use Voltaren gel & the lidocaine patches.

May your sleep bring some relief.
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