I don't know much about ldm....when I was put on ldn, my neuro said to at least try it for 3 months to get a true feel. It wasn't pleasant.... Eventually nausea plus did go away. I am not a year into it and I have a tic.....
Please let us knoiw what your doc says.....
I am so sorry for how you are feeling and wish you the best through this medicine journey.

Shoot.....I'm sorry. That really stinks. I hope you are able to find something helpful ASAP! Hugs.

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Methadone takes about three to four days to get up to a steady state in your blood. Just an FYI so you don't expect miracles in the first few days. It take a long time to get in to your system and a long time to get out of your system. E

I had great success on methadone 5mg tid for my crps. I found it worked much better than other long acting opiods that I tried.

Good luck with it and expect that because of methadone's long half-life you will need a few weeks on the medication before you decide if it is really helping.

Also, methadone leaves the pain receptors, long before the half life is over. So pain relief may shorten, but the drug is still in your system afffecting other things. Doctors tend to increase doses, because of this, and that is when people get into trouble with this drug. Increased levels in the body can bring on a QT event or cause respiratory depression.

I did receive a call from my PM this morning. He asked me to stick with it for a little longer as it takes some time for the body to get used to it, just as gigicnm mentioned. He also told me, if it continues to give me problems, try decreasing my dose to see if that helps.

Last night, I did start feeling a little better. When my doctor called, I asked if it was possible that I was just experiencing withdrawal symptoms from all of the hydrocodone that I have had to take over the last year just to have a little relief. All of the symptoms seemed to be very similar and I have not had to take any over the last few days. I was told that it was a possibility. Hopefully, that is all that it was and I am through the worst of it now.

Thank you all for your opinions and support.

Alaina

Alaina- thank you for starting this thread. I am curiously reading your progress as you start this new med. For me it seems my body gets fooled by something new so i feel great the first few days then crps says ok i've figured out this new med and just starts acting up again like its old self and i'm back to feeling crappy. So i really hope you do well with this cause maybe it would be worthwhile for others to try as well. Please post an update if you can

happygirlpa;

It seems to me that I am experiencing the exact same thing. Every time I have been given a new prescription, or a prescription has been increased, I feel wonderful for a few days and then, blah! I have only been on methadone for a little over a week, but so far, my pain levels were down quite a bit when I first started taking it. Now, it is starting to creep back up a little each day. I have noticed that I have gained a small amount of ROM in my toes and the joints within my foot, so I can say that I have gained a little from it. I just find it a little confusing how my body and the CRPS seem to react to the prescriptions wonderfully for a few days and then it goes back the other way. It is the scariest roller coaster ride I have ever been on in my life, and it seems there is no end to this ride. I am so frustrated and scared.

Alaina

Alaina,

Had not seen this post when I PM'ed a moment ago. Confusion, frustration, fear and pain do not sound at all better. The feelings that go along with all of this can be so overwhelming at times. I think too when I try something new I get my hopes up and then CRASH big time when it doesn't work at all or as well as I had hoped. I know little about the meds you are on so I had not commented on the thread, but have kept up. I cannot offer any suggestions, but know that I'm pulling for ya. Take care of yourself. ~mac

I wanted to take a moment to apologize to anybody that may have been upset by a previous post I made about me actually having a heart. I realize now that it sounded a little bit as if I were lashing out at somebody, but to be truthful, I was only making a sarcastic joke about myself. I thought at the time that I was only self-deprecating myself but apparently others here did not take it that way.

I may be wrong on that and perhaps it was me saying that my own mother is heartless as I was trying to say my mom is one of the few who has to deal with situs inversus, which is true. Please don't get me wrong, I love my mom, but I do think that she is a little heartless, so yes, I did intend what it sounded like. Why is it that I think that she is heartless? Well, here is what I have to say.

When my sister was married the first time, her and her husband were living in Texas to be closer to his family. When Christmas came around, they ended up spending their first Christmas with his family. This was the first Christmas that our family was not entirely together. Because of this, my mom stopped talking to my sister for nearly a year. My sister and my mom did eventually get along again until my sister got divorced for the second time. My sister had her reasons for this, but my mom did not agree with her reasons, so she completely disowned her from our family. They still talk from time to time but not like they used to.

Removing one daughter from her family was not enough. My mom and I had a argument back in 2006. At the end of the argument, she told me to leave and never come back and never call again. After a year and a half, my dad finally stepped in and brought us together to talk again. It was never a caring conversation again like we had in the past. I always felt as if I was talking to someone who completely despised me but was forced to be nice to me when I was around. We never were able to regain the relationship the way it used to be.

Two years ago, my mother-in-law was diagnosed with cancer and going downhill very quickly. My husband and I were the only ones who were capable of taking her in and caring for her. We ended up missing my family's Thanksgiving and Christmas that year since we were caring for my mother-in-law. Taking her with us three hours away, when her family was all close to here was not an option. My mom was furious at the fact that we could not make it for the holidays for her own sake.

In July of last year, my mom decided to host a family reunion. By this time, my mother-in -law was in a hospice program while living with us. She was having a nurse come every other day to check on her. Once again, we could not make it. You would think that an oncology nurse would understand. Nope, she once again told me to never show my face around her, and never call ever again. In October of last year, three days before her 76th birthday, my mother-in-law passed away.

Now that my mom has disowned both of her children, my aunts and uncles, her brothers and sisters, were quite upset with her. Because they did not agree with her, she no longer talks to them either.

My mom seems to remove everybody from her life that does not agree with her completely. This is why I feel that my mom is heartless. I have ignored her request to stop calling her. I call her almost once every week. I have not entirely worked her back into my life and I know our relationship will never be the same as it was years ago, but I still love my mom and still need her.

I am sorry for the long rambling post, but I felt it was necessary to apologize and explain why it is I said what I did. I hope that those that I have hurt can forgive me. I do not like feeling as if I have hurt someone else.

Alaina

Expressing oneself in a limited medium without the benefit of body language and voice can be fraught with peril. Subtle nuances get lost and what you meant to say may look like something completely different to the reader.

I don't know if you offended anyone or not but I certainly didn't see anything inflammatory in your earlier post. Human relationships are complicated. Parent/child relationships are sometimes extra complicated. There can be a lot of hurt there that leaks into other things. It sounds like you might have been worried that it seemed you were being harsh to your mother. I took your comments as sarcasm and not something mean. Even if I did take it as something mean, you do not present as a callous person, so I would just assume there is history there. My relationship with my own mother isn't easy. Some people are difficult, not just with family but with everyone. It is good that you show so much love to your mother even when she is difficult. Just make sure you take care of you too.

I can't speak for anyone else but no worries here! Remember, "We're human...and I like that!"

Sleep easy, you did nothing wrong.