Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-09-2016, 10:20 AM #11
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Quote:
Originally Posted by -Spike- View Post
I apologize to you for taking so very long to see your post and to replay to it. I'm struggling badly with my CRPS right now, which is really no excuse. You are carrying a much heavier load than I am right now. It just isn't fair that a quality person like yourself is carrying such a heavy load. It brings tears to my eyes. I am praying for you. I wish I could make your hardship just disappear.
Spike...we all have pain that sometimes prevents us from posting when we want to or even going online when we want to...it IS a perfectly acceptable excuse if one were needed...but it is not. You have always been supportive and caring and I knew you were there supporting me even without your post. Hugs and hope you are feeling better today.
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Old 02-09-2016, 12:23 PM #12
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Hey Catra,

It is unbelievably frustrating when one has additional pain on top of the 'usual'. Especially when the body part affected is an arm, which one tends to use constantly, without thinking, aggravating the issue and worsening the pain. It must be incredibly difficult having to power through as you cope with your little one. I have excruciating referred pain down my arm, but I have no-one reliant on me, if nothing gets done here, it doesn't matter.

I hope the injection you had starts to give some relief over the coming days and that the Specialist comes up with treatment ideas, or a healing time-factor for you. In the meantime, do rely on your boyfriend for those things you cannot manage and to simply give you a break where you can rest your shoulder. I am sure he will not mind.

Dave.
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Old 02-09-2016, 12:49 PM #13
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I also suggest trying the Infrared Heating pad - the heat & healing action goes deeper than regular heating pads. I have 1 from 2004 and it still works great, but got a larger size in the jade disk style for one the back of the recliner.
I got mine for muscle, RSI,CMP pain, but dh & son use it also..for general aches & pains.

http://www.amazon.com/s/ref=sr_nr_n_...nid=2941120011

The Thermotex products have rectangle flat sections, somewhat padded but not nearly as soft/flexible as the smaller circular disk pads in the UTK Heating Pad with Natural Jade Stones.

If you can request or find a practitioner that has a low level laser - some chiros have them - more so than PTs or MDs..
It might be worth trying a few sessions of LLLT for pain relief.
I can say it worked very well & quickly for my various pain areas.
I can't say if it will help for the RSD part though.

If your RSD isn't in the shoulder area, maybe try some of the KT tape/kinesio taping?
https://www.kinesiotaping.com/
There are pretty good videos on how to apply it, but having a pro do it a few times first is the best. It lasts about 4 days,

I recently had a shoulder strain or small tear and my chiro did some Gua Sha and then taped my shoulder. I also used the infrared heating pad a lot along with it.
https://www.youtube.com/watch?v=FJuuIcI-4Es
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Old 02-09-2016, 02:51 PM #14
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Quote:
Originally Posted by Jo*mar View Post
I also suggest trying the Infrared Heating pad - the heat & healing action goes deeper than regular heating pads. I have 1 from 2004 and it still works great, but got a larger size in the jade disk style for one the back of the recliner.
I got mine for muscle, RSI,CMP pain, but dh & son use it also..for general aches & pains.

http://www.amazon.com/s/ref=sr_nr_n_...nid=2941120011

The Thermotex products have rectangle flat sections, somewhat padded but not nearly as soft/flexible as the smaller circular disk pads in the UTK Heating Pad with Natural Jade Stones.

If you can request or find a practitioner that has a low level laser - some chiros have them - more so than PTs or MDs..
It might be worth trying a few sessions of LLLT for pain relief.
I can say it worked very well & quickly for my various pain areas.
I can't say if it will help for the RSD part though.

If your RSD isn't in the shoulder area, maybe try some of the KT tape/kinesio taping?
https://www.kinesiotaping.com/
There are pretty good videos on how to apply it, but having a pro do it a few times first is the best. It lasts about 4 days,

I recently had a shoulder strain or small tear and my chiro did some Gua Sha and then taped my shoulder. I also used the infrared heating pad a lot along with it.
https://www.youtube.com/watch?v=FJuuIcI-4Es
I went ahead and ordered the infared heating pad from Amazon...went with the 69.99 one that is a little smaller but it should be find for me as I am fairly small...we'll see how that goes.

I do have RSD in my entire upper body and neck, including back, both arms, torso, and hands...it's just that THIS pain isn't RSD but something else from my fall. Last year when I did PT when I strained my other shoulder (when I was 8 months pregnant) they used laser therapy combined with ultrasound therapy and heat. That was my first 2 weeks of sessions before they did anything more aggressive...don't know why the PT this year started immediately with aggressive stuff which just made the pain worse but no sense worrying about that. The laser therapy did seem to help. We tried the tape and while it made my shoulder feel better...all that was off set when we took the tape OFF and my RSD flared up bad. This shoulder pain is slightly different than last year (in the opposite shoulder too) in that I have the same pain...but also have a different pain too that is more sharp located towards the top of the shoulder as opposed to just the tearing/pulling pain towards the back area of the shoulder.

Pain is still really bad today from the shot. Keeping my fingers crossed that after a few days I will start to feel some relief. Looking forward to getting the infared pad from amazon in a couple days (love Prime shipping).
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