 |
|
| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
|
|
Thread Tools | Display Modes |
02-19-2016, 07:59 PM
|
#9 | ||
|
|||
|
Member
|
Thank you all for the support in making this difficult decision.
I went for my "standard" 1/2 day today, with the knowledge I was going to be discharged from PT. She was actually nice and understanding. Although I am thinking it's more because she saw herself as winning. Don't care. My health, my body, my pain, my program, my function. Unbeknownst to pain psych, I informed her that after much thought and having PT be removed from the program due to my taking a week to reduce my pain being put in the wrong envelope, I do not believe this program is effective for my needs. Mainly because the aspect of pain management is missing. On to the pain doc (who happened to be a different one, my regular doc was out today). I explained the same thing: the pain management aspect is missing and I believe PT is an integral component and with that no longer in place, I need to end my participation in the program. He asked if the amitriptyline was helping. I told him I don't believe it is helping enough for me to continue on it and it's not like when my knee pain gets to a high level, I can take an amitriptyline and that will help bring the pain down. Than is what I need. Finished up with OT where we discussed pacing and how to continue to move forward with that. She told me they are always available to email if I have questions. Overall, I have a sense of relief at the moment. And a direction for the future...I will be calling a local PCP to verify they accept my insurance (and medicare since that starts in April). Once verified, I am contacting my insurance case manager to change my PCP in the system and enlist her help in transferring my records. If this new PCP doesn't feel comfortable (or I don't feel he has enough CRPS knowledge) to manage my pain & get some local therapies started, I will have him send a referral to the local pain clinic I discovered later in this game than I hoped. TaDa!!! Gentle hugs and hope for low pain days to all...and thank you again for all of you!
__________________
Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe |
||
|
 Reply With Quote
|
| "Thanks for this!" says: |
|
|
Threaded Mode