Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-20-2016, 07:41 AM #1
mommystime2 mommystime2 is offline
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Join Date: Apr 2012
Posts: 152
10 yr Member
mommystime2 mommystime2 is offline
Member
 
Join Date: Apr 2012
Posts: 152
10 yr Member
Default Pain med game

Frustrated. Haven't been on here in a long time. So please bear with me. Back up a few years, well 14... Major injury too much to explain, was told be in wheelchair for life, 3 months later off 90% of meds to control back pain, I walked with support, then walked with the crutches that attatach to arms, slowly progressed to walk without support 50% of time, then it became good n bad days needing them, so anyway I have dengue rate discs disease with multiple herniated n bulging discs and 6 lumber vertebrae with 5&6 fused, it's a birth defect. 4.5 years ago injured both arms scraping and painting cupboards and walls and ceilings in trailer. Was diagnosed with tendinitis n carpal tunnel syndrome, iced constantly was put in exos casts due to swelling increases and decreases that could remold them multiple times, and was in a sling in right arm because it was the worst. That was September 2011. In March or April 2012 was diagnosed with complex regional pain syndrome. Multiple tests done including a nerve condition test in January 2012. The bruises on right arm didn't disappear completely to June. So in September on 2015 was diagnosed with possible stiff person syndrome as well, still waiting to see neurologist. I've pain in one pain med for 14 years, I've been at high doses, I've been at low doses, it's pretty much stated do as I feel needed for control. Hydrocodone 5/325 1 to 2 pills every 4 to 6 as needed. I was able to get 120 every 7 days, I didn't take that many so I asked to have it lowered, now it's 60 every 7 days. Along with 20 mg baclofen 3 times a day. When my pcp isn't available to sign my scripts which I normally fill every 3 to weeks as I don't use 60 a week due to side effects. Another doctor needs to sign them. This one dr who has signed my scripts decides I also need a urine test, mind you I've had 1 urine test in 14 years because of her, she wanted another one this past Thursday, I said no, she isn't my pcp and I'm not jumping through hoops for her again, I'd rather be in pain then deal with her. Why does she have the authority to decide my stuff? My pcp asked her to sign it so just sign it right? They work in same office, she has before only filled my script for 5 pills or 10 pills because my pcp wasn't there. Does anyone deal with this kind of thing? Seriously after 14 years on same medication why does she mess with new? I'd rather be unable to move then let her decide my plan of care. Ok rant over...
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