Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-19-2016, 09:28 PM #4
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8 yr Member
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The stress of having to deal with this disorder does have an effect on our friends and family as well as us. We may end up loosing some friends because they get tired of us backing out of going out, or it is always at your own place. Family doesn't seem to understand sometimes, thinking that you were able to do something yesterday, why not today. Even understanding the amount of pain that we have to deal with is difficult for them to understand. It's not just the pain, CRPPS wears us down and we become completely exhausted, physically, mentally and emotionally more often than usual.

I have been having a difficult time at home as well for a few months now. Husband does not want to learn anything and no longer believes what I have to deal with every day. He thinks it is just another excuse, has told me that it is all psychosomatic, separated our beds without discussing it first, back to drinking, verbal abuse... basically left me feeling quite alone at times. Yes he has been a big help, but has worn me out emotionally.

I am glad you were able to stand up for yourself. I hope that all your stress does not cause too many problems both with CRPS and your relationship, but if it does, even if it doesn't, there are always people on NT to listen when you need them.
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