Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-17-2017, 02:48 PM #3
Hotfoot53 Hotfoot53 is offline
Junior Member
 
Join Date: Jan 2017
Location: Florida
Posts: 47
8 yr Member
Hotfoot53 Hotfoot53 is offline
Junior Member
 
Join Date: Jan 2017
Location: Florida
Posts: 47
8 yr Member
Smile Thank you littlepaw!

Quote:
Originally Posted by Littlepaw View Post
Hello and Welcome Hotfoot,

I am sorry that you had to come join us but you will find understanding here. We all know how difficult it is, especially in the beginning. I can't speak to the SCS but recent studies advocate for its use earlier in the course of CRPS than was thought in the past. You'll find a sub-forum for SCS under the Medications and Treatments page where you may be able to find feedback on different models. There is also a search feature for the entire forum.

I hope that you get help with meds or nerve blocks. I am a firm believer in starting with the least invasive options first and going from there. Also if you have not had adequate work up or imaging advocate for it. If there is a treatable cause for your CRPS or something else mimicking CRPS like a nerve entrapment or unidentified stress fracture then treating can make a big difference in your outcome.

Hold on to hope. 80% of CRPS patients improve with time according to Cleveland Clinic specialists. Using your limb to the extent that you can without causing flare is important. If you aren't getting physical therapy it is a good place to start and aqua therapy is wonderful and has helped others including myself make improvements. Hang in there, try to keep stress down and remember to breathe. Improvement can be slow and gradual in coming but it does come.

I hope you find relief and healing soon,
Littlepaw- thank you!
I so appreciate your response and your encouragement. I've been hoping against reality that this isn't CRPS, but it is. I've been in PT for 6 months and it has helped a lot. There isn't a local pool to use and I'm not driving now. I'll check the SCS forum though, that's a good tip!
I'm going to hang onto that Cleveland clinic statistic- it seems there's so much gloom around this diagnosis and I know being upbeat helps decrease pain so I'm working on it. Ever use the protectometer iPad app? It's also a book and website. I find it useful. Thank you for the welcome and advice.
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"Thanks for this!" says:
Littlepaw (01-17-2017), PurpleFoot721 (01-27-2017), RSD ME (01-17-2017), Shay08 (01-19-2017)
 

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