((((((((((((((((((((((((((((Froggsy))))))))))))))) ))))))))))))))))))))))))))))))))))))))


Just take care of yourself honey
You can't save, heal,help, give therapy to , everyone else .You have enough on your plate.
Eventually everyone will find their own way ..I am sure we all have some of these issues with our family members to some degree . But we cannot save the world .We have to take care of ourselves first and somehow when we do that really well - the others seem to fall in line a lot better.
It won't happen overnight but it will happen - now you just be good to YOU
That is the most important thing to do right now

Peace
GnP

Hey Daniella,

Thanks!!! How are you my dear? Bio is pretty useful isn't it? I'm glad it helped with your anxiety. I am currently planning my holiday which is always cheering it's just the symptoms are kind of bad at the moment and are kind of ruining trying to anything at all. It's hard because I have to have things done like having my legs seperated night time and morning time because of pressure ulcers (my legs twist around each other and I get large pressure ulcers) and all the touching sends me wild for the day, especially if it is done too hard! which it generally is... grrrr... oh well. Was your mum hard at first? many mine is just a SLOW learning....

Love ya

Froggsy xxxxxxxxx

Hey GnP!!

How are you babes?? The problem is because I am reliant for almost everything I need my mum and everyone to be positive because otherwise I can't do anything - if they are frustrated and cross then I am stuck in bed. If they are frustrated and cross then I don't go to the toilet. If they are angry and hurt me when doing the physio or stretches then I am in agony. I am so dependent on people that if they don't do it right then I am screwed!! and unfortunatly it relies on them being willing and in a frame set where they can help. If that makes sense

Love ya

Froggsy xxxxxxx

Hi Frogga,
What happens over there if you presented to an emergency room?
If you presented here with all your symptoms you would have an MRI within hours.
I just don't understand how they can ignore such significant neurological pathology and not seek to find the reason.
Surely it would be cheaper for them to find a cause, treat it if possible than support you as they have to as a quad.
I am so sorry for your predicament--- as a nurse it makes me so angry when I see such shocking treatment.
Thinking of you
Tayla

I am so sorry I missunderstood you. It sounds like you are having a very rough time with your health and your family.

I feel like Tayla does. I don't understand how they hospital and Drs. can just not get some test done on you and try to get you doing better. I don't understand how they can just ignore the shape you are in and leave you like that.

As far as your Mum, what I would hope that she would understand is that you need her help more then anything right now but there might come a time when you can do a lot for yourself once you start getting better. I pray you do. I wish we could look into the future and see you at how you are going to be a few years down the road. I have faith that you will see some better days.

Ada

I'm really so sorry. How do you think your mom and family could help you more? Could you try to ask them to do that for you? I mean in physical and mental support? I think for me and sometimes it doesn't work but telling people my needs and not feeling bad for that. I often fear hurting people's feelings but then I get hurt in the long run. It doesn't mean your not appreciative or love you family because you say what is nothering you. You have so much going on and I'm sure if you were in there shoes you would want to help in the best way you could. I know things with health care are different out of the us. I used to suffer from an eating disorder and the girls I knew out of states had a real hard time finding care and in a timely matter. This may not be possible but is there a way you can send your health records to places in US that may be able to help you more? Ok I'm so clueless but what holiday is coming up for you? Well I'm sending thoughts your way.

Hi Tayla

I guess the thing is that over the years we have got the point where every time I end up in ER I end up in hospital for months and get worse and thus I refuse to be admitted. For me to get an outpatient scan takes FOREVER! I have rung my neuro and asked him to hurry up the appointment because of my shoulder (the dislocation means that my shoulder is now being pulled on to my ribcage - I have EDS and so dislocations are "normal" for me, but it's still abit of a nightmare). However you'd think it would be cheaper and easier to do something wouldn't you? but no - Social services bill isn't paid for by health so why worry! (geez and people wonder why I'm cynical!)

Hope you are ok

love

Frogga xxxxxxxx

Hi Ada,

oh well, mum will pull herself together, she just hates seeing me in this shape and she believes that if she bullies enough then I will be able to get better. She also doesn't like having the carers living in the house. I was supposed to have 2 carers but she agreed to be the second carer so that we only needed one, however she now doesn't want any carers - yet doesn't want to do the caring! It drives me nuts... oh well

love

frogga xxxx

Hey Daniella

How are you? Basically I'm a quadraplegic.

I need turning, dressing, hoisting, washing, hoisting ontot the toilet, my teeth brushed, my face washed, my hair brushed, my physio and stretches done, feeding, transfers to wheelchair from bed, transfers to the car, someone to give me my medication, someone to accompany when I go out, someone to put my splints on when needed etc. My carers do some of that, they dress me, do some of the stretches, some of the splints, feed me, do hair/ teeth but they need a hand with some of the hoisting and physio but mum doesn't want to do it because she truly believes that if I try hard enough I can do it. Yeh, right, now. That would be nice! LOL. Mentally I'm ok with it - yeh, it's definetly not easy, but I can manage somehow.

Holiday - Becksy (a mate and carer) and I are going away on holiday together, we are going inter railing around europe, the new plan is that we go from the UK to holland to berlin, to vienna to slovenia and then fly back over about 10 days. Sounds good huh? It's going to be hard for Becksy but I am probaly going to be catheterised so we won't have to bother with bathroom transfers and we just won't bother with physio other than pressure relief and will just cut back the stuff we are supposed to do to the minimum also I am lucky that she can lift me easily so we aren't bothering with hoists.

Love ya

Froggsy xxxxxxxxx

Great big hug and sympathetic howl....