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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Hey Daniella
How are you? Basically I'm a quadraplegic. I need turning, dressing, hoisting, washing, hoisting ontot the toilet, my teeth brushed, my face washed, my hair brushed, my physio and stretches done, feeding, transfers to wheelchair from bed, transfers to the car, someone to give me my medication, someone to accompany when I go out, someone to put my splints on when needed etc. My carers do some of that, they dress me, do some of the stretches, some of the splints, feed me, do hair/ teeth but they need a hand with some of the hoisting and physio but mum doesn't want to do it because she truly believes that if I try hard enough I can do it. Yeh, right, now. That would be nice! LOL. Mentally I'm ok with it - yeh, it's definetly not easy, but I can manage somehow. Holiday - Becksy (a mate and carer) and I are going away on holiday together, we are going inter railing around europe, the new plan is that we go from the UK to holland to berlin, to vienna to slovenia and then fly back over about 10 days. Sounds good huh? It's going to be hard for Becksy but I am probaly going to be catheterised so we won't have to bother with bathroom transfers and we just won't bother with physio other than pressure relief and will just cut back the stuff we are supposed to do to the minimum also I am lucky that she can lift me easily so we aren't bothering with hoists. Love ya Froggsy xxxxxxxxx |
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