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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Hi Frogga, Please tell me to sod off if I am asking the wrong questions and if you think I should just mind my own business but I was wondering what your neurologist attributes your quadraplegia to? There seems to be so much that you are enduring that is just not acceptable by any standards. I feel so sorry for you that it seems that your medical team seem to allow you to have all these shocking problems without there seeming to be any interventional medical management. It seems very much like they have wiped their hands of you and you just have to deal with it . This goes against every single grain of the nurse in me. ![]() At your age you deserve better and I am very sad for you. I have awful dystonia of my legs and spasmodicaly my arms but can't figure the pathology of RSD that could render you totally unable to move, which is why I so wish that your doctors would take you under their wings and find the reason. Sorry if I am seemingly emotional about this but I have children your age and I can't even imagine the hardship for you and your family. I would so rather it be me who suffers than my children. Please take care and as I said, I apologise for all my questions. ![]() Tayla xo |
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