Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-10-2007, 12:37 PM #11
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Default Hi Ali,

I kept a pain diary for over 3 years. I wrote in it everyday. It seems like when I was at my worst was when I was able to keep it going. I used it for a Vioxx lawsuit that is still on going. I made copies of the pages that was needed along with my medical records. They would also help I think with Social Security and even Workman's comp if a person had them.

I think it would be a great thing for you to do to keep a diary for your Dr. to read.

A lot of Drs. have the ideal that the less we know, the better off they are. When they screw up then we wouldn't know it. Some Drs. will tell people to get on the computer and learn about what they have but I believe most don't want us to.

When I first ended up with TOS my Dr. sent me out to so many Drs. to get diagnosed he finally ask me one day to go out and buy me a cheap computer and help him diagnose me. He and my PA had only had one other case of TOS in their 20 years each of medical practice. With the computer I was able to help diagnose it. It still took us a year to get it done. A lot of people have been able to diagnose themselves from the computer and even go out and get the help they need.

As far as your Dr. I believe that if he doesn't want to let you listen and learn and he is blameing your Mom then I think he has no answers so he's trying to cover his own butt. I would definately push for a new Dr. or place to go for help.

Ada
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Old 11-10-2007, 04:49 PM #12
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Crazy

I just had to post...here I go....



My son was suspeded on the last day of school for giving his friend (who happened to be a girl) a hug. It was their LAST day of school!
((((((no emotions aloud!!!!!!!!!!)))))

This world seems to do it's best at getting colder and colder through the most horrible of times. We're in the middle of a war and the things this country finds to be dangers are colors, hugs and images of baby Jesus. Yet what we allow our children to see are graphic horror movies and thugs on t.v. womanizing and talking about knocking off police officers. What's wrong with this picture? Let's face it...it's US vs. THE WORLD when it comes to our kids.

I have to try my hardest to teach my kids to be independent thinkers. Even though in this day and age, it's considered to be uncool or against certain man made "policies". I didnt scold my son for hugging his friend on the last day of school either...infact I told the school how pathetic it was for them to react the way they did. I realize there are policies out there to prevent sexual harrassment in the classroom, but the line should be drawn somewhere. Sorry!

Okay, now I'm fired up!

::counting to 10::

Alison, I live in Massachusetts but my husband, like you, is also from England and, he has mentioned the changes in nursery rhymes over the years as well. So I found your post particulary interesting. It's a world wide issue, so it's not just our country that is in need of a good reality check. Disturbing, yet mindly comforting.


Might I add...you seem so mature for your age. I do hope you get well soon sweetie, it's such a shame to be going through so much at your young age. My is with you...

May I also comment (now that I'm calm) regarding self diagnosis?

I believe what you wrote is so true, that's how I suspected this is what I probably had months ago, through the computer. I had to be my own doctor as well frightening, isnt' it?

I realize though, there are many on this board who had to start with no direction at all...for those of you...I'm holding up a drink in your honor. (Non-alcholoic of course)
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Old 11-10-2007, 11:32 PM #13
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Angry

Well, as a band mom, I just have to chime in here. (you knew this Ada )

PDA......I get so sick and tired of hearing these parents complain about PDA (Public Display of Affection). It is against school rules. So they say. Yet half the parents let their kids make out right in front of them, half don't really care either way, and there's always a hanful that complain, yet you never seem to see them there?

I am a mom, of typical teenaged daughters...both have boyfriends, both have kissed them around me, both have held hands with them around me. I don't care! I'm like live it up! Be normal kids! Kiss the boys!

Geez some of these parents act like they were never teenagers?!

I know what I did as a teen, and I'm here to tell ya, if I knew what I knew now, I'd prolly have done tons more than I did...laffs

A while back (this year) a boy put his arm around his girlfriend on a band trip to a ballgame...another mom said....you need to remove your hand! And then the girls mom turned around stood up, and said I think I'm her mother not you, and if I think it's out of place I'll tell my child, not you!

Yay! for this mom! It should be a parents examples and controlling their children not a few snotty people who like to be control freaks.

I cannnnot stand control freaks! Period! I cannnot stand them.

Let the kids wear whatever they want, let them eat what they want, let them hold hands, let them hug, let them walk with their arms around their boyfriends. For gosh sake's....be glad they are normal! laffs

The way these control freaks are getting, we are almost communists! We are not the land of the free any longer...that's long past us now. We have someone setting igonorant stupid rules for everything. It's unreal! This is not a cummunists country, but by golly it's slowly becoming just that.

Before you know it they will have every single one of us wearing matching clothes, shoes, havein our heads shaved and walking a straight line around the country until we drop n die.

Americans need to stand up for themselves, they need to vote! they need to get these control freaks out of these offices and put someone in there who is for them, and not stupid rules!

Sure we all need some guidelines to go by, but its the land of the free, we should be able to pick what we wear. etc...when and how we pray. This is just stupid...and whats more stupid,....we are the ones who aren't voting, we are the ones letting it all happen.

I think the only law that needs to be set this year, is everyone at age 18 must register to vote, and everyone over the age of 18 must vote. No execeptions. Then everyone gets a voice in what we wear and how we pray...etc.

We have all heard this growin up, that one day we will destroy ourselves, brothers will fight brothers...etc....we are getting very close to that....

Before you know it someone will be shooting each other over seeing someone pray, or someone wearing an AC/DC shirt....plain ignorance.

But it's what is to happen, we are just helping it along faster than the speed of light.

Ok I'll hush now...laffs

Debbie
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Old 11-11-2007, 03:48 AM #14
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This is one of the many reasons I homeschool.
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I AM NOT A DRUG SEEKER,
I AM A PAIN RELIEF SEEKER.
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Old 11-11-2007, 11:55 AM #15
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Default Hi Debbie,

I sure got you on that soap box didn't I. You go girl.

I do vote. I haven't figured out who I will vote for but I have figured out who I won't. LOL

I get on that soap box all of the time. I think I sent you a copy of the email I just got from the Senator of Co. He actually wrote back to me. I won't go into what it was about here but I have become a fighter.

I see such ignorance around here in people who are in authorative positions. Again, I believe it goes back to book sense and no common sense. Daddy always said you had to have both.

You are right, it is up to the parents to teach their kids right from wrong. Unfortuntely around here I see so many parents so involved in work and their fun that they just throw their kids out to fend for themselves.

My caregiver was talking yesterday about what generation started the change. She is in her late 30's or early 40's and she said it was her generation. They came along in the hippy, drug, and don't care generation. I won't lie my daughter never did drugs but I see some of those don't care qualities in her. She is getting better but it's took her a long time. When both parents have to work it's as if our kids become latchkey and raise yourself kids.

I think in Susan's case, where I was really strict with her she is doing that thing called" I'm not going to be like my Mother thing." LOL Now she is seeing it didn't work. You have to know where you kids are at all times, not thinking you know. Another thing she won't stand up to these people in school and I will. At first it bothered her that I did, now she is ok with it. We have to stand up for what we know is right.

Then we have these idiots in the schools that want to be control freeks as someone said and don't even know right from wrong themselves. They just think what they think is right, no one else is. I think they have the ideal that they have the last say over our kids anymore. Well they don't, in my book.

As far as the colors, what happens when the gangs are wearing every color out there, then what? Same with religion, red, green, what colors come next associated with religion. I would say they all do in some form of religion.

MMoran, Dustin was taken to the office on the last day of school for protecting a little girl in the 6th grade that this 8th grade boy was actually going to beat up. A teacher took him in and the Asst. Principal said she would have done the same thing he did.

I agree on the coldness that is being brought into this world. I still hug my boys and kiss them on the cheek and I encourage them to treat people good. Devin as I said, is my hugger. He walked up to a little girl that's in his 7th grade class in Carls. Jr. and gave her a quick hug. Her Mom just smiled at me and went on. It's the schools making matters worse.

Ada
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Old 11-11-2007, 12:14 PM #16
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G'mornin Ada,

Yep, you got me on a soapbox, that's for sure

First we as Americans let them take prayer outa school, now we are allowing them to take affection out, before ya know it we will all be walking zombies dressed alike in a never ending line.

People in America truly need to wake up and vote and make changes, it will never happen until everyone does this. Not half, not a 1/3...but all.

I have taken my kids with me to vote since they were old enough to walk, and when they could reach the buttons I let them push for me. I have them watching debates with me, going to the local party headquarters. You name it. I have taught them this is their birth right, to vote and to make changes. They in return have talked to their friends etc...and have gotten some of them to register.

I think it should be like the boys who must register with civil service, that everyone upon their 18th birthday must register to vote.

We need to teach these kids how very important it is to vote. Instead of sitting back, not registered ourselves and complaing about everything.

My oldest daughter turns 18 on Jan. 12, 2008. She is beyond excited that she finally gets to go vote herself! Her application is filled out, stamped and layin by the front door, on her birthday she said she was taking it to the post office to mail herself. (I am more than proud of her for taking this step herself)

The color issue, is just ignorance. People really need to get over stuff, we are all citizens of the usa...what color we are, or aren't should not matter. We should all stand strong together instead of being so petty over stupid stuff.

Only in America....


Debbie
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