Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 11-12-2007, 09:43 AM #3
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Kyzy

I had those exact same symptoms you had when I first started with the RSD in 98. I am not kidding. I was so bad that I was so suicidal I was a mess.

I did have several things going on along with the RSD though and I am wondering if you don't have Fibro along with the RSD.

I couldn't wear a bra for a few years. I was told I was having anxiety and panic attacks along with what was going on. I was in so much pain I felt like that was the cause of not being able to sit still or sleep at night. I slept with 2 heating pads, I used my braces for my other problems and used 3 Lidoderm patches to try and calm it down. I even took pictures of how I looked for my Dr. I also had a shoulder brace and neck brace to wear for other problems. I spent almost 4 years in PT to calm things down along with triggerpoint injections, 100's of them and 3 blocks. I also used 2 tens units for a couple of years.

Bill opened all of my bottles and cans. Now Dustin does when he is here. There are times I just put things back because I can't get them open.

I had the muscle spasms in the neck, shoulders and back. It was horrible. I got many of triggerpoint injections in those areas to calm it down.

My little finger is smaller on the right hand then the left. My right hand is in worse shape all together then the left. They also spasm up and look deformed at times. At first when I had TOS surgery I thought that took care of the spasms but they started back up again about a year ago.

I can't wear heavy coats nor heavy coats. There are days I only wear shorts because of being so uncomfortable in anything else. I can't wear long sleeve blouses. I have a few but I put those things on and then I come right back out of them. My body gets too hot all over and then I go into more of a pain cycle.

I get the mottled colors in the palm of my hands and they swell when I walk and swing them or use them too much.

The blocks helped me the most with the pain along with the triggerpoint injections.

I hope you do get the help you need to get better. I know exactly where you are at right now and it is bad. I would make sure I had a Dr. that was up on RSD and also look into the Fibro. It does come with the RSD at times. We do have a Fibro forum where you can read up on it.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Question about 6 question cdr form Bobby17 Social Security Disability 18 07-14-2013 11:36 AM
Curious..question for you.. CoolAngel26 Survivors of Suicide 12 09-02-2007 12:03 PM
Curious.. CoolAngel26 Community & Forum Feedback 2 09-20-2006 05:57 PM
For Curious Braindrain Community & Forum Feedback 12 09-11-2006 02:06 PM


All times are GMT -5. The time now is 08:18 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.