Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-27-2008, 09:46 AM #9
bassman bassman is offline
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Join Date: Feb 2007
Location: Milwaukee Wis
Posts: 276
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bassman bassman is offline
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Join Date: Feb 2007
Location: Milwaukee Wis
Posts: 276
15 yr Member
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Quote:
Originally Posted by finz View Post
Hi....

I'm a new lurker here after finally getting a RSD dx to go with my TOS. I had a similar run in with the doctor at my local pain clinic who informed me that there was no way I had TOS because my pain is mostly in my neck/shoulder area, not my collarbone. Ummm.....sure

I hope that when you get the chance, you copy an article on RSD/CRPS and mail that to the hospital administrator.

I have no problem when medical say they have to look something up. I'm a nurse myself, and I know I don't know everything, so frequently I had to research a new treatment or drug. But when they try to pass themselves off as an expert in an area where they clearly have no clue......that just makes my blood boil

Have you had any luck with your regular MD figuring out what caused the increase in pain ? And, how did your wife do ?
Thanks for asking. We still don't know what caused the acute pain that day. After about three days, it went down to "normal" levels. Unfortunately, I can't get an MRI because of a spinal card stimulator. Doctors seem to rely on that tool so very much these days...

My wife has recovered from her gastritis. She is now seeing a gastroenterologist, but is doing much better.

Interesting thing about this hospital -- it is HUGE! This is the second or third largest teaching hospital in the state, and integrated with the only medical college in the area. They have a well respected pain management clinic, etc. etc. But at 5:00 am, the ER just didn't feel like working if someone wasn't bleeding or otherwise leaking fluids onto the floor.

Hugs

Mike
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