Thanks Desi!
I am trying the peppermint as I am typing this but I am cheating and I am not sure if it will work. See, I am using CHOCOLATE coated peppermint! You know, like York Peppermint Patties, Andes Mints, Yummies like that. Unfor tunately it`s the wrong time of year for candy canes and I don`t like those peppermint hard candies. I`m not real big on flavored teas either. I`m really a Lipton girl. Maybe I`m too picky. At this point, do I want things to taste good and not help the nausea, or have things I don`t care for and lessen the nausea? I AM GOOFY! Well, I hope these chocolate "guys" work. We will see. Now the Phenegran. Does it make you sleepy? I take alot of other stuff besides the Topamax that makes you sleepy, (you probably know) and I don`t think if I put my truck on "auto pilot" it will prevent me from hitting a tree if I fall asleep. Well, just wondering. Thanks Desi so much for your Ideas. I really appreciate them. One more thing, How in the heck would you squeeze a pear to get the juice out?

Hi Franny, it is a script. Here is how I use mine, since it does cause drowziness I bought a pill cutter, I cut mine in to 1/4 and take it that was before or after a meal. Depended on the meal and how nauses I am I take the addtional quater after the meal if I need. It .. good luck toyou. This is a very effective nausea pill( they ofter want to give Zoloft. how ever they only give 12 of these at a time in a script so that is why I take phennegran instead, that would never be enough(zolfot) for me. CZ

Could you ask your doc if you can take the med that makes you ill at a different time like with dinner? I have been very nausea the past few days and have been drinking gingeral and that is helping.Hope you feel better

Thank you so much! I do have a pill cutter and I know what pill to say NO to if he suggests it.(Zoloft) I hope I am not misleading when I am saying nausea. I am not actually getting sick, like in, well hangin ~ on to the white pretty round chair I have in my bathroom and actually getting sick, but I walk around a good part of the day feeling yucky in my tummy. It doesn`t necessarily happen after a meal. I take 6 sometimes 7 pills in the morning(they have to be taken then) and one of those have to be taken on an empty stomach. Not too great taking so many of those for breakfast on an emptystomach! I am trying the ginger ale and peppermints that the wonderful, caring people here have suggested and when I see the DR. in a couple of weeks, I will ask about the Phennegran. I am writing down how YOU take it. I think starting with a quarter of a pill to see what happens is a great suggestion.
Thanks for caring! I appreciate it more than you will ever know!

[QUOTE=daniella;341934]Could you ask your doc if you can take the med that makes you ill at a different time like with dinner? I have been very nausea the past few days and have been drinking gingeral and that is helping.Hope you feel better[/Q

daniella,

(Gosh, that name is so pretty!) I might try to figure out how I can do that. I have to take two a day. One in the AM and one at bedtime so it could be tricky. I am also trying the gingerale thing and also someone suggested peppermints. (I only like the chocolate covered kind though and I don`t know if they count). The mints and the gingerale seem to help a little. Thanks for the idea of changing the time I take the pills though. I really appreciate you taking the time to give me some ideas. Since we are all in this together it is so comforting to know someone may be able to help and relate to what you are going through.
Thanks so much!

Thanks actually my name is Gina. I don't know why I didn't use my real name but if I ever had a girl I would of named her Daniella. This would be after my gram. I think you are right the support and guidence is so helpful from others that are in similar situations like it helps to continue to fight. I have been having a ruff stomach lately which usually happens with my leg flare up. Just another thing to add to the issue is overwhelming so I hear you. Just a side not overall diet and food choices I think really impact me as well. So you may want to look at your daily food choices. Bland may be your best friend a long with salty. Keep those saltine crackers on hand. I just stocked up on some easier to eat on the stomach foods. Hang in there.

Hi Desi,
Well got ahold of my doc and Phenegran was a NO GO! That Butthole! he said I had to get it from my primary care Dr. This pain management just want to do procedures, get your meds right, then let your primary Dr. do your meds after that. My primary Dr. REFUSES to prescribe any narcotics. He tells me he wants to give me a medication to go off of it. He also said he knows ALL about RSD and has helped 4 people. When I said will you help me ? he called 2 Dr`s, one he said wanted to try something but it would hurt like hell, and the other is another pain specialist an hour away! This guy is wack! Now my pain Dr. wants me to ask him to prescribe Phenagran or whatever it is! Right! I looked in the phone book (why not?) and found another pain specialist not too far from me and SHE will stick with you and write prescriptions every month as needed I was told. (maybe she will know something about RSD!) I had to get a referal from my primary Dr. of course! My pain management nurse told me he can`t refuse to do it. I have to wait until October to get in but I will and my current pain Dr. will keep me covered until I get in to see LUCKY DR. NUMBER SEVEN! Until then I think I will tart weaning myself off of this Topamax. I can`t stand the nausea anymore!
Hey Desi! Have a really great day and smile it looks good on you!

Hey Franny-
I'm on Synthroid and Topamax too, and I take my Synthroid first thing in the morning on an empty tummy and then I eat a little breakfast (usually cereal with milk! to protect the tummy!) and THEN I take my other meds. Although, Topamax has never affected my stomach, so are you sure that that's what's doing it? Not to second guess you or anything, but could it be a bug or something? I randomly got nauseous and threw up for a month once. And no- wasn't pregnant! Silly doctors couldn't figure out what was wrong with me, and then a year later when my thyroid hit rock bottom they decided that that was when it originally quit working. So have your thyroid levels checked too. They can really effect your digestion because they control your metabolism. Makes sense when you put it together, huh? Sucks when it takes them a year though! Grrr. So before you start on a Powerade only diet, have that checked out too. And guess what is one of the best things ever? Pepto comes in mint flavored chewable tablets. They're fabulous! You can keep them in your purse! And then, a heat pad on the tummy is a wonderful thing too. Try that. Peppermint tea and a heat pad is heaven when you feel like your tummy is revolting against you. Hope this helps!
Lynn

Hi Lynn!
Thanks for your ideas! Funny you should mention thyroid but I am currently taking medication for low thyroid and it has to be taken on an empty stomach. It could be out of wack though. Just like I am! I will have this checked out when I see my "wonderful, know-it-all" primary care Dr. who discovered the low thyroid. At first he said I was pre- diabetic. I see him in a couple of weeks. Thanks for that suggestion! I don`t think it`s been checked since I have been on this medication. I think the nausea is from the Topamax because it started when I began taking taking it and it is a very common side effect. For some, it goes away. It`s been well over a month and it hasn`t, plus, I have been a raving bitc_! since I have been on this stuff. I think more than usual. I bit my 88 year old mother`s head off the other day when she told me she know`s how I feel! (like anyone knows beside those experiencing this crap!) Guess I better call her. My poor husband, well, last weekend I almost made him a woman! (If you know what I mean!) LOL! Guess I will see if it`s just me or the Topamax when it gets out of my system. I`m sick of being nauseous 24/7. Thanks for your help Lynn! Have a great day! You deserve it!

Hey Gina! That name is beautiful too! (Italian?)
There is a diet especially for RSD. I read it on the website rsdhope.org. It was written by a Dr. Hooshmad or something like that! (I probably murdered his name!) I have been meaning to print it out. You know it might help! He also has a book out but it is REALLY expensive! I keep looking on E-Bay hoping to get it there at a better price. There is so little information on paper for us out there! I would love to have a reference book and be able to carry it around with me! That way when my family or friends say, "what did you say you have? I have never heard of that!" Well no shi_! I didn`t either until I got it! I would just hand them the book! The Dr. who told me I had it (took off a cast and that`s when it hit!)handed me one piece of paper and said"go home and look it up on the computer." I was in so much pain in his office, I couldn`t talk and left in a wheelchair. That was the best information he could give me about RSD? Ridiculous! That`s all I remember. Anyway, Shoot I am babbling! Geez the medication makes me do that! I guess I do it on the computer too! SORRY.
Crap, now I forgot what we were discussing! Oh yeah, diet. Thank you soooo much Gina for reminding me that diet does play a role. Have a beautiful day!!