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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Member
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My pm doctor has suggested trying suboxone for pain control. I am leary tosay the least and at this point have declined and said I would need to think about it. Here's why. First I would have to come off all my other pain meds cold turkery for three days. That means I will be in pain & may very well go into DT's. Then I will start the Suboxone. It "Will" make me sick he says. Proably for as long as a week. So I will be sick & in pain for over a week. Okay it gets better. He also siad this has about a 50/50 chance of working for me. Now for those it works for it is supposed to be great "But"!!! Now one of the side effects is that opiods are blocked from working with this medication so say your in an accident they can't give you anything else to help you because you are taking this medication. Now if it doesn't work for pain control for me I will have to wait several days for it to come out of my system to go back on my old meds. This could mean 2-3 weeks of pain & being sick. Now am I crazy or does this sound like its not worth it. Has anyone else tried this medication? Did you have any other side effecs with it? Frankly I am scared to try it. I am going to get a second opinion from my gp about this medication. Any help would be appreciated. Thank you.
Denny |
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#2 | ||
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Senior Member
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Hi Denny, Sounds like a good idea for a 2nd opinion. I have never heard of this med before. Hope all works out well for you. Loretta
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#3 | |||
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Quote:
1. What are Suboxone and Subutex? Subutex and Suboxone are medications approved for the treatment of opiate dependence. Both medicines contain the active ingredient, buprenorphine hydrochloride, which works to reduce the symptoms of opiate dependence. 2. Why did the FDA approve two medications? Subutex contains only buprenorphine hydrochloride. This formulation was developed as the initial product. The second medication, Suboxone contains an additional ingredient called naloxone to guard against misuse. Subutex is given during the first few days of treatment, while Suboxone is used during the maintenance phase of treatment. 3. Will most prescriptions be for the Suboxone formulation? Yes, Suboxone is the formulation used in the majority of patients. 4. How are Subutex and Suboxone different from the current treatment options for opiate dependence such as methadone? Currently opiate dependence treatments like methadone can be dispensed only in a limited number of clinics that specialize in addiction treatment. There are not enough addiction treatment centers to help all patients seeking treatment. Subutex and Suboxone are the first narcotic drugs available under the Drug Abuse Treatment Act (DATA) of 2000 for the treatment of opiate dependence that can be prescribed in a doctor’s office. This change will provide more patients the opportunity to access treatment. 5. What are some possible side effects of Subutex and Suboxone? (This is NOT a complete list of side effects reported with Suboxone and Subutex. Refer to the package insert for a more complete list of side effects.) The most common reported side effect of Subutex and Suboxone include: cold or flu-like symptoms headaches sweating sleeping difficulties nausea mood swings. Like other opioids Subutex and Suboxone have been associated with respiratory depression (difficulty breathing) especially when combined with other depressants. 6. Are patients able to take home supplies of these medicines? Yes. Subutex and Suboxone are less tightly controlled than methadone because they have a lower potential for abuse and are less dangerous in an overdose. As patients progress on therapy, their doctor may write a prescription for a take-home supply of the medication. 7. How will FDA know if these drugs are being misused, and what can be done if they are? FDA has worked with the manufacturer, Reckitt-Benckiser, and other agencies to develop an in-depth risk-management plan. FDA will receive quarterly reports from the comprehensive surveillance program. This should permit early detection of any problems. Regulations can be enacted for tighter control of buprenorphine treatment if it is clear that it is being widely diverted and misused. 8. What are the key components of the risk-management plan? The main components of the risk-management plan are preventive measures and surveillance. Preventive Measures include: education tailored distribution Schedule III control under the Controlled Substances Act (CSA) child resistant packaging supervised dose induction The risk management plan uses many different surveillance approaches. Some active methods include plans to: Conduct interviews with drug abusers entering treatment programs. Monitor local drug markets and drug using network areas where these medicines are most likely to be used and possibly abused. Examine web sites. Additionally data collection sources can indicate whether Subutex and/or Suboxone are implicated in abuse or fatalities. These include: DAWN—The Drug Abuse Warning Network. This is run by the Substance Abuse and Mental Health Services Administration (SAMHSA) which publishes a collection of data on emergency department episodes related to the use of illegal drugs or non-medical use of a legal drug. CEWG—Community Epidemiology Working Group. This working group has agreed to monitor buprenorphine use. NIDA—National Institute of Drug Abuse. NIDA will send a letter to their doctors telling them to be aware of the potential for abuse and to report it if necessary. 9. Who can prescribe Subutex and Suboxone? Only qualified doctors with the necessary DEA (Drug Enforcement Agency) identification number are able to start in-office treatment and provide prescriptions for ongoing medication. CSAT (Center for Substance Abuse Treatment) will maintain a database to help patients locate qualified doctors. 10. How will Subutex and Suboxone be supplied? Both medications come in 2 mg and 8 mg strengths as sublingual (placed under the tongue to dissolve) tablets. 11. Where can patients get Subutex and Suboxone? These medications will be available in most commercial pharmacies. Qualified doctors with the necessary DEA identification numbers will be encouraged to help patients locate pharmacies that can fill prescriptions for Subutex and Suboxone. |
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#4 | ||
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Junior Member
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I don't know much about suboxone but I do know that my husband's son-in-law was detoxed off of all of his pain (and bipolar) medications and then placed on this drug for pain relief in his back. This was all done under medical supervision as an in-patient in the hospital. He was in for almost two weeks and still it took another month for him to feel better. This poor guy was on all sorts of meds, including a daily pain patch, lots of Lyrica, Ativan and Vicodin without much relief. Now, he takes just Prozac, something for the bipolar condition and this medication and feels 100% better. He was ready to end it all due to pain and now he is riding a bike and taking walks with his wife. He still struggles daily with fatigue and some minor pain issues, but he is really so much better it is amazing.
I just wanted to add what little I know because this was done under close supervision in the hospital. A second and third opinion may be well worth the time and effort. |
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#5 | |||
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Member
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Hi Denny,
I wrote a post about this a while back. My therapist suggested that I ask my doctor for Suboxone. It generally is used to wean people off opiates. But is currently being presecibed for pain relief. I beieve there are some major advantages over opiates. But, as with all medications...Do your research! All prescription meds seem to effect everyone differently. I have heard though, that it is working well for a few of my doctors patients. My suggestion: do your homework and be open to the possibility even if it is a new use for this med. Keep us informed. All the best Diana |
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#6 | ||
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Thank you for this information. I had read some of it before on another website but not all of it . I am just not sure this medication adjustment is going to happen. I am just too scared to try it.
Thanks for helping me. You have no idea how much it means to me. Great big Hugs, Denny |
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#7 | ||
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Member
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Coffeebean, I have heard it works really good for the people it works for but I would not be in a hospital setting.I would go off all my meds cold turkey on my own at home for 3 days then start this one. That just soundsstupid & dangerous to me. I take similar medication to your sn in-law. I have pain patch, dilaudid, a sleeping pill, topomax, and 2 different ulcer medications. Plus some off & On medications. It just doesnt make any sense to me & I knew it didnt seem right. If your son in-law spent two weeks in the hospital how can my doctor expect me to do this at home alone. There is no doubt that I will go into DT's after all of these years on all of this medication. Thank you for the help.I will talk to my other doctor but I think your post helped me make up my mind. There is no way I am doing this. And I am giving control over my meds back to my regualr doctor not my pm. He can just deal with my SCS. I am done!
big hugs for everyones help & support, Denny |
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#8 | ||
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Member
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Diana, Its not what it was used for in the past that bothers me. It is the way that they want me to start using it. Three days with zero pain meds will be hell. And may go into DT's without dropping slowly off my medications. Which wuld just draw out my high pain longer. ANd then they told me this medication "will" make me sick in the beggining for a week or so. So I will be sick & in pain. And on top of that they only gave it a 50/50 chance of working. Those arent great odds. If it doesnt work it will take several days for this medication to get out of my system before they can change me back. And if you read coffeebeans post her son in-law was hospitialized to do this changed. Thats huge. And bascially we take the same kinds of medications. That really scares me. What did you think after reading that? I would appreciate your take.
hugs, Denny |
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#9 | ||
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Member
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Does this med have any similarity to low dose naltrexone? Naltrexone in high doses is used for addiction. In lower doses may help stimulate the immune system.
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#10 | |||
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Member
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Denny you are absolutely right! I went through detox on my own from 100mg Duragesic Fentayl (every two days) plus 100mg ms contin X 3 daily plus breakthrough Dilaudid 4mg as need. I think we were on pretty much the same stuff. I thought I was going to DIE!
![]() I had tremors, and just basically felt like I would not live through this! I agree you need a well layed out plan. Can you talk Doctor into making a different plan? I used HBOT to help with my withdrawals and clonidine. Now I just do my HBO dives at home. I need to dive right now, because last night I didn't think I could handle another ounce of pain. Advocate for yourself with the doctors. See if there is anyway that they will come around to your way of thinking. Let us know what happens. I wish you the best. Diana |
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