Have you seen a Thoracic Outlet Specialist.

I am thinking this is what you may need to do. I saw numerous Drs. and didn't get a diagnoses of TOS from any of them. My Physical Therapist are the ones that diagnosed me and sent the info over to my PCP who in turn sent me to a Vascular Surgeon in Denver. There are several there. I see Dr. Sanders. My PCP said he had only had 1 patient with TOS in his 20+ years back when I was diagnosed as did my PA. It took us 3 years to get a diagnoses for me.

There are also a lot of Drs. that donot believe in TOS. I ran into several of them. Neurologist are the worst about not believing. If they can't see it on an EMG then they don't want to accept the diagnoses. Most of the time it doesn't show up on EMG's at all.

I think also they could answer your question on RSD too. TOS Specialist are pretty up on both.

I wanted to say also that there is possibly TOS specialist in your area. They are few and far between.

Ada

Hi Tracey,

A neuclear med test is a x-ray with radioactive material. It's done for cancer studies, heart studies, rsd, because the radioactive material shows up during the test and will show 'hot spots' like bone changes, tumors, condition of the heart and veins. A couple come and visit from Oregon, where we are from, he is in neu. med. dept. at hospital, and she is a conselor. They both have been so supportive. Take care, sorry for the late reply. loretta

Tracy-
I have CRPS in my arms from the shoulder down and I rarely have a burning pain. Usually a really uncomfortable sharp ache deep in my arms. And the sensitivity to touch is only when the pain is really bad. My arms do feel weak the more pain I endure and swelling is common as well as stiffness and temp changes.
I'm so sorry that you are not getting consistant reports from ur dr.s I know how frustrating that can be. I hope this site gives u hopefullness and gives u a will to get thru this like I know u can. it has for me.
God blessu all!
Sarah