I have to keep this short tonight. I was diagnosed in 1989 with RSD. First in my right shoulder. I had to have a surgery to repair my shoulder and it spread from there. I now have full body RSD. I have had 3 series of 10 each stellate blocks. I also had a Upper Thoracic Radio Frequency Sympathectomy. I now treat myself with HBOT in a home chamber at 2.4 ata. I have bone crushing pain, spasms, swelling, mottled skin, frozen cold extremities and I also have burning pain. All this is kept to a minimum with HBOT.
My life is a constant planned existence to keep pain at the lowest level possible at all times. HBOT has been the saving treatment and I am thankful, but not a cure for me. I, also like many of you was tested for Lyme. Not enough markers to test positive. I don't believe there are any negatives, through the CDC, but I could stand corrected. I live my life the best I can each day to my standards, not anyone elses. I am not sure there will be a cure in my life time, so I just move through each day with gratitude. Not so graceful at times, but certainly thankful for each painful night I survive.
This is the really short version. I left out all the details of meds, too much meds, side effects of meds, the effect on my family and the diminishment of quality of life I have suffered, until I realized there was still a lot I could do, with concessions, exceptions and proper planning. Each time I check into the forum or speak with one of you, I realize that I am in Good Company!!!! I AM BLESSED. I have learned a lot from the RSD and the daily challenge of pain, limited range of motion and the mental strain. My hands are swollen and painful tonight, so I'll close for now.
All the best to each of you,
Diana