[debbiehub]

I am watching Tyra now and it is about fantasy makeovers? Where is RSD?

[DianaA]

Hi Deb,
Each of these women are selfless people. Doing and caring for others. Ashlee is a 18 year old girl with RSD and they mention it as a neurological disease. She has developed a charity for RSD by organizing concerts I think it was "Rock Out To Knock out RSD". They are getting a fantasy makeover to reward them for their good works. Ashlee does get to give a short explaination of RSD and its effect. Tyra does say RDS but one of the makeover artist get it correct. Diana

[Curious]

diana, i know there are a bunch of tyra's segments on youtube...is this one there? we can post the link if it is.

[Curious]

http://tyrashow.warnerbros.com/

if you watch the intro video, it says she is a rock and roll survivor.

tyra plays repeats here a day or so later on a different channel. i'll see if i can record it.

[dreambeliever128]

I watched it today and I was disappointed in the fact that it was a makeover instead of dealing with what these 4 women are doing with their lives.

Tyra did say RDS and that bothered me. It wasn't covered the way it should have been and I think her turning this into a makeup session made it seem less important.

Ada

By the way, Ashley did do great, it had nothing to do with her.

[DianaA]

Curious,
I dvr'd the show. I really don't know whether it is on utube or not. I do hope you get to see it. I understand what Ada was saying. The forum that it was presented in may have not been to optimal, but the fact remains that it was presented. Also, I think I would have done it just for the mention of RSD. I thought Ashlee was brave to go through with what it took to make it happen and I applaud her. Her commitment to helping RSD with her charity work is a great show of her character as well. Curious, if you find it on utube I think it would be great to post. I would love to see a show like we saw with mystery diagnosis and Zoe with RSD. Maybe next time there will be more. I am always thankful and try to look at the cup half full as much as I can.
Ada, I really do understand I have had this **** since 1989 and I wish I didn't have to explain it everytime someone asked why I have to do something and be an exception to the rule! Or why I can't do this or be here....or "you look fine to me". But, it is what it is and I just live the best life I can. Let's keep trying to "get the word out there". We will have our day. Utube now has RSD patients and we will move on from there. Ada, keep warm. It is snowing in Northern New Mexico now.
Hopefully I can see you in May when I visit the Springs! Love to you..Diana