Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-26-2009, 02:42 PM #16
SBOWLING SBOWLING is offline
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Join Date: Mar 2009
Location: Ohio
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SBOWLING SBOWLING is offline
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Join Date: Mar 2009
Location: Ohio
Posts: 310
15 yr Member
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Quote:
Originally Posted by Martg1946 View Post
Hi everyone, I have RSD in my right foot and leg to my knee and also (doctor thinks) I have shingles on top of that..ok, now that I've caught everyone up, two days after I started taking the Valtrex, my LEFT foot and ankle has swollen and hurts if I touch it, no color change yet, the back of my ankle really hurts and has a little scab on it and really hurts like a raw sore burns but its not open, I haven't done anything to it, could the RSD be spreading and can it really go from one foot into the other or does it have to travel a certain way?? I really don't have a clue..thanks for everyone's help on this site...I have learned a lot...Pepper
Pepper,

I have full body RSD. If effects all my limbs, face, scalp, back of my head, stomach, chest, inside my mouth,tounge, heart, and lungs. However, it is different for everyone. Western Medicine knows a lot about the human body however no two people have the same nervous system. This is what makes it so hard for a cure to be found. I know somedays it hard but you need to keep moving. I find going to the YMCA and walking in the cool water helps. The cool water puts the burning out and the water allows you to exercise without putting weight on the effected limbs. You are weightless in the water so you don't feel the pain.
Talk to your doctor about your medications and how they make you feel. Be an active participant in your health care.

Good luck,
Sbowling
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