Lisa,
I remember when I was told about this dise4ase and that I had never heard of it either. June 19 will be my 3rd year anniversery and I have yet to accept it. I do not have a supporting husband as he does not want to know about my conditions, that might make them real. Depression about it is normal and if you live in an area with a psychologist THAT KNOWS YOUR DISEASE (which I don't have) it would help come to terms with it a little better. I wanted to let you know you are not alone it is a frustrating thing to have a disease that no one knows about it. Ask your DR about a PAIN Center near you, learn about RSD and see if you can at least get a consultation. As far as my mental state I can't seem to get past this horribly thougt I had when I was diagnosed "Well Jeanette, life as you knew it is over" I have learned to take this one day at a time, sounds cleshea but it works most of the time. One of the things I studied and persued was Landscaping, now I can't even pull the weeds out of my flower beds I put my mind into college online but it is really tough from time to time, since I am in poverty grants help me.
The trick is to live (or exist as I feel somedays) and let tommorow take care of itself
Do check into a Pain Center, they have been my savior to my pain.
I do feel your your anguish as this is not a disease that is easily delt with on your own.
Hope this amy give you a direction to go in
tjbird

Hi I can relate to you a lot. I have been to many states and countless of doctors in every specialty and many pain docs. I am waiting for the next pm as we speak. It is hard to not give up but my mom is my biggest support and she keeps me motivated to hold to hope and to keep going to doctors because it is finding the right treatment to make this better which can take awhile. I too think for me I am working on staying in the day and getting through that one in the best way. I am a worrier about the future too but it gets me no where because what ever happens I am going to have to find a way to deal with it so to speak. Who knows all the worring may be for nothing and better times may come soon. Right now I do miss a lot of things or right now just even sitting in comfort. On better pain days though I try to push myself to do new things that I can do and not isolate. I used to be ashamed of my pain but now I try to remind myself that people all people have hard times and there is no shame in this. We did not choose to have rsd. You may not be able to do the same job but you may very much be able to. If not it may open a door for something new. I wish I had more answers nd relief and trust me this week I have been in a horrid mood from pain and spreading but I am trying to hold to hope I guess and hope you and others do to.