Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-04-2009, 04:54 PM #17
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
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AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
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Quote:
Originally Posted by medictlc View Post
Pete,

Just wondering why you refer to provigil as EVIL for RSD patients. Jeff has taken it in the past for his fatigue due to sleep apnea which he had before RSD. It didn't work for him so he quit it. I take it occasionally when I'm on night shift and have to stay awake the next day for something. It doesn't make me jittery or feel like I'm speeding like the old over the counter stay awake pills. Just lets me stay awake and not feel like a zombie. Jeff has extreme fatigue but not any problems with short term memory loss yet. (Thank goodness, because I have trouble with that myself somedays and I dont have a medical condition.)

Teresa
Hiya Teresa,
I call it Evil, for RSD, because for me, it "Drove" the pain to insane levels. (I needed it for my TBI, though). My pain meds were raised to insane levels too.
It was horrific. I know that the company is going to lose their patent soon, and is coming out with another "blend". I think it's going to be "lighter".
Not sure. I do know that some folks really swear by it.
It's just me.
But, I get jumpy from a cup of coffee...
So, take that into consideration..

I know that two drugs I've seen / been prescribed,
Seroquel, and Provigal.
Downs to go to bed, and Ups to clear your head...

That's like life in the 70's. A sad life.

Memory, sleep disorders, etc. are ALL common with RSD, and the meds we take for it. There are some great books you can get. In fact, it's just common sense, too.
ALWAYS, put your keys in the same place.
Things like that.

Be well Ya'll!

Pete
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