Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-02-2009, 09:47 AM #11
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Originally Posted by stressedout View Post
But how could MS or Parkinsons come on from this injury and RSD??? The tremors are a small as just slight shaking to my whole hand flapping. Scarey. Everyday this monster confuses me more and more. I go in for blocks starting this wk.
It doesn't have to be related.

Fact is, RSD causes tremor. It is a good idea to have other conditions excluded that cause tremor, especially if there is a family history of other conditions like MS or Parkinson's. I think that's what this is about.
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 05-03-2009, 12:11 PM #12
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its not at all related but alot of us that had pre disopistion to other conditions .. in my case RSD has brought them out,, and RSD can and most cases cause the tremors that you are talking about it alot of us have them and for no reason but a symptom of the RSD. i would ask your doctor the next time that you talk to them and ask what they think...

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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




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Old 07-27-2009, 09:09 PM #13
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Do you hands tremor when they are at rest or when you are trying to do something. The latter is an action tremor, which I have. I don't know what a nerve block is. I take Primidone for the tremor, and it is pretty effective, allowing me to write again, which I couldn't do before. My heart is with you. billie
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Old 07-27-2009, 10:38 PM #14
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I was screened a month ago for autoimmune diseases and had blood work done,with an MRI ans Catscan,,,two of the physical test that my dr's did was,he had me hold my arms straight out in front of me while seated,,[palms facing downward],,then flex your wrists fingertips down and hold that postion,,if M>S is present,,your hands will start flapping,,before i had the tests run,,they thought that i had MS,,,bobber
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Old 07-27-2009, 10:54 PM #15
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My hands are almost always in a "Fist" position.... when I am tired or nervous they shake a lot.

I usually do not notice it happening as it happens quite often. Usually a friend or acquaintance will point it out to me.

I can't stop it from happening but I can calm it down by holding my hands or crossing my arms and in a way trapping my hands.

I wish you all the best...
I know how frustrating all of these "weird" symptoms can get.

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Old 07-28-2009, 01:38 AM #16
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Default Goodness

Haven't anything quite like these shake things y'all speak of. I know if I try to use say a ratchet for too long, then I'll have bad pain and shakes, like a charley horse, sorta...didn't think it was anything to do with the RSD though, just thought I was getting old, pretty much. lol. Didn't happen before I had this nightmare though. Wow. I never realized just how many things have been changed in my body until fairly recently. Y'all really got to stop telling me these things!

Thank you all for the info. Later all, Smoke
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Old 07-28-2009, 09:48 AM #17
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Haven't anything quite like these shake things y'all speak of. I know if I try to use say a ratchet for too long, then I'll have bad pain and shakes, like a charley horse, sorta...didn't think it was anything to do with the RSD though, just thought I was getting old, pretty much. lol. Didn't happen before I had this nightmare though. Wow. I never realized just how many things have been changed in my body until fairly recently. Y'all really got to stop telling me these things!

Thank you all for the info. Later all, Smoke
Hi, Im sorry this has begun for you. It is very upsetting.I have full body tremors. the worst is when they hit my face. twitches and jerking . the rest of my body goes through a whole little dance of twitches tremors jerks and shaking. I take balcofen three times a day with a double does at night. It has helped me a great deal. I also was given ativan for the anxitey of it all. Good luck and I am sorry this has begun. May I ask how long you have had rsd?CZ
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Old 08-01-2009, 12:27 PM #18
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I got it from a sprained knee in '03, it started burning and itching nearly immediately, but has stayed in just my knee until recently. It went into remission sorta twice, didn't need painkillers for several months each time, although I couldn't carry much weight or run at all or walk very far and/or quickly, but it was better. This time when it hit, last spring, it really went nuts, pain levels off the chart, and only then was I diagnosed properly. Up until then it was a 'stubborn sprain.' From everything I have been reading, I have been beating the odds in every respect. I think that's because I haven't stopped living my life, tried to just ignore it, medicating the pain enough to enable myself to go about life as normally as I can. Seems to me that if I continue working it normally day by day, it is kept in check. So...I try to ignore the fact that it hurts, and just move on. I also consider myself lucky that my baby is a daddy's boy, and needs/demands for me to hold him, play with him, etc. Keeps me happy, and when I'm taking care of him, the pain level is considerably lower. It also seems that I got lucky in that the new drugs most everyone here has been on or are currently on I have had a bad reaction to. I wonder how many symptoms associated with the RSD are not the side effects of the drugs? Anyone not on neurontin etc had these twitchy effects? I'd imagine so, but I am curious as to the rate. I recently met someone who never had any problems medically and when put on klonopin acquired grand mal seizures. Still has them, months after use was stopped.

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Hi, Im sorry this has begun for you. It is very upsetting.I have full body tremors. the worst is when they hit my face. twitches and jerking . the rest of my body goes through a whole little dance of twitches tremors jerks and shaking. I take balcofen three times a day with a double does at night. It has helped me a great deal. I also was given ativan for the anxitey of it all. Good luck and I am sorry this has begun. May I ask how long you have had rsd?CZ
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Old 08-01-2009, 06:00 PM #19
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I have a classic "tremor".
I can't write, well I can't understand my writing, unless I Print in all Caps. Slowly.

Typical Scenario:
Grocery store, or any one operating a cash register.
I hand over the dough.

"Why are you shaking"?

Oh, sorry, head injury.
don't worry, but thanks for noticing!
Then, I smile @ the person.

People with me, hate it! HATE IT!

But, what can I do? I cannot see my hands shaking, probably because my eyeballs shake at the same speed!
What to do?

I just go with it...
I can get very frustrated when typing or writing, or any other fine movement is required.
Know what?
I'm still Alive!
Shake it Up Baby! (Twist and Shout)...
well, it's not quite that cool....


Pete
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Old 08-02-2009, 05:51 PM #20
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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