Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-06-2009, 04:27 PM #4
stressedout stressedout is offline
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Join Date: Apr 2009
Location: NJ
Posts: 143
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stressedout stressedout is offline
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Join Date: Apr 2009
Location: NJ
Posts: 143
15 yr Member
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Quote:
Originally Posted by SandyRI View Post
I am a terrible baby - I find the SGBs very scary and painful. Plus we need to drive over an hour to get there so I am in always in a flare by the time we arrive, my head hurts badly and I'm nauseus (sp?). They have spaced mine 3 -4 weeks apart, although I just moved one up so that it will be only 17 days since the last one. Even though I get versed and now something else to calm my stomach, the procedure is still very painful for me and I still feel very sick afterwards. I've had 6 of them, I guess I should be getting over it, huh? The doctors and nurses couldn't be nicer, and my husband is very good about taking care of me, thank God.

Only the first couple of blocks gave me a lot of relief in my originally affected areas (shoulder, then my neck and head). I actually slept on my head after the first block for a night! Now the blocks help with the spreading symptoms, like the pain and burn and coldness in my hands and arms and legs and feet. And the face and neck rashes and burning. They seem to last about 10 days or so, them the symptoms slowly start to come back.

I am glad you are doing so well with yours, good luck. Sandy
We drive an hour and 15 min away too. I am happy it worked the first time but then again that confirms the RSD and I guess I hoped it wasn't. I feel better about getting them now though, anything to get rid of this pain. The color is more normal now too. The pain is back but not so bad as it was. I feel like maybe I will get my life back. Although now I feel like if we get it into remission I will have to look over my shoulder for this monster for the rest of my life. I was confused though about not getting side effects. I thought that was a sign it was succesful.
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